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非裔美国家庭的自闭症诊断与治疗:文化的影响

African American families on autism diagnosis and treatment: the influence of culture.

作者信息

Burkett Karen, Morris Edith, Manning-Courtney Patricia, Anthony Jean, Shambley-Ebron Donna

机构信息

Developmental and Behavioral Pediatrics, Cincinnati Children's Hospital Medical Center, 3333 Burnet Avenue, ML4002, Cincinnati, OH, 45229, USA.

College of Nursing, University of Cincinnati, Cincinnati, OH, USA.

出版信息

J Autism Dev Disord. 2015 Oct;45(10):3244-54. doi: 10.1007/s10803-015-2482-x.

Abstract

Cultural factors such as health care access and autism spectrum disorder (ASD) symptom interpretations have been proposed as impacting delayed diagnosis and treatment for African American children with ASD. A qualitative study of urban African American families caring for their child with autism was conducted with 24 family members and 28 ASD professionals. Cultural caring meant families protected their child from harm including potential or actual distrustful encounters, and took action for their child and community to optimize their child's health and address the knowledge deficits of ASD within their community. Families and professionals believed cultural influences delayed families' receiving and seeking appropriate health care for the African American child with ASD affecting timely autism diagnosis and treatment.

摘要

诸如医疗保健可及性和自闭症谱系障碍(ASD)症状解读等文化因素,被认为会影响非裔美国自闭症儿童的诊断延迟和治疗。对城市中照顾自闭症孩子的非裔美国家庭进行了一项定性研究,研究对象包括24名家庭成员和28名ASD专业人员。文化关怀意味着家庭要保护孩子免受伤害,包括潜在的或实际的不信任遭遇,并为孩子和社区采取行动,以优化孩子的健康状况,并解决社区内对ASD的认知不足问题。家庭和专业人员认为,文化影响导致非裔美国自闭症儿童的家庭在接受和寻求适当医疗保健方面有所延迟,从而影响了自闭症的及时诊断和治疗。

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