Middleton J W, Piccenna L, Lindsay Gruen R, Williams S, Creasey G, Dunlop S, Brown D, Batchelor P E, Berlowitz D J, Coates S, Dunn J A, Furness J B, Galea M P, Geraghty T, Kwon B K, Urquhart S, Yates D, Bragge P
John Walsh Centre for Rehabilitation Research, The University of Sydney, Sydney, New South Wales, Australia.
National Trauma Research Institute, Monash University and The Alfred Hospital, Melbourne, Victoria, Australia.
Spinal Cord. 2015 Oct;53(10):729-37. doi: 10.1038/sc.2015.87. Epub 2015 Jun 23.
Focus Group.
To develop a unified, regional spinal cord injury (SCI) research strategy for Australia and New Zealand.
Australia.
A 1-day structured stakeholder dialogue was convened in 2013 in Melbourne, Australia, by the National Trauma Research Institute in collaboration with the SCI Network of Australia and New Zealand. Twenty-three experts participated, representing local and international research, clinical, consumer, advocacy, government policy and funding perspectives. Preparatory work synthesised evidence and articulated draft principles and options as a starting point for discussion.
A regional SCI research strategy was proposed, whose objectives can be summarised under four themes. (1) Collaborative networks and strategic partnerships to increase efficiency, reduce duplication, build capacity and optimise research funding. (2) Research priority setting and coordination to manage competing studies. (3) Mechanisms for greater consumer engagement in research. (4) Resources and infrastructure to further develop SCI data registries, evaluate research translation and assess alignment of research strategy with stakeholder interests. These are consistent with contemporary international SCI research strategy development activities.
This first step in a regional SCI research strategy has articulated objectives for further development by the wider SCI research community. The initiative has also reinforced the importance of coordinated, collective action in optimising outcomes following SCI.
焦点小组。
为澳大利亚和新西兰制定统一的区域性脊髓损伤（SCI）研究策略。
澳大利亚。
2013年，国家创伤研究所与澳大利亚和新西兰脊髓损伤网络合作，在澳大利亚墨尔本召开了为期一天的结构化利益相关者对话会。23位专家参与其中，代表了本地及国际研究、临床、消费者、宣传、政府政策和资金等方面的观点。筹备工作综合了证据，并阐述了原则草案和备选方案，作为讨论的起点。
提出了一项区域性脊髓损伤研究策略，其目标可归纳为四个主题。（1）建立合作网络和战略伙伴关系，以提高效率、减少重复、建设能力并优化研究资金。（2）确定研究重点并进行协调，以管理相互竞争的研究。（3）让消费者更多地参与研究的机制。（4）进一步发展脊髓损伤数据登记处、评估研究转化以及评估研究策略与利益相关者利益一致性的资源和基础设施。这些与当代国际脊髓损伤研究策略制定活动相一致。
区域性脊髓损伤研究策略的这第一步明确了更广泛的脊髓损伤研究界进一步发展的目标。该倡议还强化了在脊髓损伤后优化结果方面采取协调一致的集体行动的重要性。
