启动我：鼓励研究参与者共享基因组信息的方法。

Start me up: ways to encourage sharing of genomic information with research participants.

机构信息

Duke Initiative for Science &Society, Duke University, 237 North Building, Durham, North Carolina 27708-0222, USA.

出版信息

Nat Rev Genet. 2015 Aug;16(8):435-6. doi: 10.1038/nrg3981.

Abstract

Personalized and precision medicine initiatives explicitly call for researchers to treat research participants as partners. One way to realize that goal is by returning individual research results to participants. I propose a number of concrete steps that could facilitate that process.

摘要

个性化和精准医学计划明确呼吁研究人员将研究参与者视为合作伙伴。实现这一目标的一种方法是将个体研究结果返还给参与者。我提出了一些具体的步骤，可以促进这一过程。