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没有人在讨论房间里的那头大象:思考澳大利亚原住民和托雷斯海峡岛民健康研究中的研究影响和益处问题。

No one's discussing the elephant in the room: contemplating questions of research impact and benefit in Aboriginal and Torres Strait Islander Australian health research.

作者信息

Bainbridge Roxanne, Tsey Komla, McCalman Janya, Kinchin Irina, Saunders Vicki, Watkin Lui Felecia, Cadet-James Yvonne, Miller Adrian, Lawson Kenny

机构信息

The Cairns Institute, James Cook University, PO Box 6811, Cairns, Queensland, 4870, Australia.

Midwifery and Nutrition, School of Nursing, James Cook University, 1 James Cook Drive, Townsville City, Queensland, 4811, Australia.

出版信息

BMC Public Health. 2015 Jul 23;15:696. doi: 10.1186/s12889-015-2052-3.

Abstract

BACKGROUND

There remains a concern that Indigenous Australians have been over-researched without corresponding improvements in their health; this trend is applicable to most Indigenous populations globally. This debate article has a dual purpose: 1) to open a frank conversation about the value of research to Indigenous Australian populations; and 2) to stimulate ways of thinking about potential resolutions to the lack of progress made in the Indigenous research benefit debate.

DISCUSSION

Capturing the meaning of research benefit takes the form of ethical value-oriented methodological considerations in the decision-making processes of Indigenous research endeavours. Because research practices come from Western knowledge bases, attaining such positions in research means reconciling both Indigenous and Western knowledge systems to produce new methodologies that guide planning, evaluating and monitoring of research practices as necessary. Increasingly, more sophisticated performance measures have been implemented to ensure academic impact and benefits are captured. Assessing societal and other non-academic impacts and benefits however, has not been accorded corresponding attention. Research reform has only focussed on research translation in more recent years. The research impact debate must take account of the various standards of accountability (to whom), impact priorities (for whom), positive and negative impacts, and biases that operate in describing impact and measuring benefit.

SUMMARY

A perennial question in Indigenous research discourse is whether the abundance of research conducted; purportedly to improve health, is justified and benefits Indigenous people in ways that are meaningful and valued by them. Different research stakeholders have different conceptions of the value and nature of research, its conduct, what it should achieve and the kinds of benefits expected. We need to work collaboratively and listen more closely to the voice of Indigenous Australians to better understand, demonstrate and measure health research benefits. The authors conclude that as an imperative, a systematic benefit assessment strategy that includes identification of research priorities and planning, monitoring and evaluation components needs to be developed and implemented across research projects. In Indigenous health research, this will often mean adopting a benefit-led approach by changing the way research is done and preferencing alternative research methodologies. As a point of departure to improving impact and reaching mutually beneficial outcomes for researchers and partners in Indigenous health research, we need to routinise the assessment of benefit from outset of research as one of the standards toward which we work.

摘要

背景

人们仍然担心,澳大利亚原住民被过度研究,但其健康状况却没有相应改善;这种趋势在全球大多数原住民群体中都存在。这篇辩论文章有两个目的:1)开启一场关于研究对澳大利亚原住民群体价值的坦诚对话;2)激发思考,探讨如何解决原住民研究利益辩论中缺乏进展的问题。

讨论

在原住民研究工作的决策过程中,以伦理价值为导向的方法考量是获取研究利益意义的形式。由于研究实践源于西方知识基础,在研究中获得这样的立场意味着调和原住民和西方知识体系,以产生新的方法,必要时指导研究实践的规划、评估和监测。越来越多更复杂的绩效衡量标准被实施,以确保捕捉到学术影响和益处。然而,对社会和其他非学术影响及益处的评估却未得到相应关注。近年来,研究改革仅侧重于研究转化。研究影响辩论必须考虑到各种问责标准(对谁负责)、影响优先级(为谁)、正面和负面影响,以及在描述影响和衡量益处时起作用的偏见。

总结

原住民研究话语中一个长期存在的问题是,大量据称旨在改善健康的研究是否合理,以及是否以对原住民有意义和有价值的方式使他们受益。不同的研究利益相关者对研究的价值和性质、研究行为、研究应实现的目标以及预期的益处种类有不同的概念。我们需要合作,并更密切地倾听澳大利亚原住民的声音,以更好地理解、展示和衡量健康研究的益处。作者得出结论,当务之急是制定并在所有研究项目中实施一种系统的益处评估策略,该策略包括确定研究重点以及规划、监测和评估部分。在原住民健康研究中,这通常意味着通过改变研究方式并优先选择替代研究方法来采用以益处为导向的方法。作为提高影响力并为原住民健康研究中的研究人员和合作伙伴达成互利成果的出发点,我们需要从研究一开始就将益处评估常规化,作为我们努力的标准之一。

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