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神职人员对善终与恶终的看法:为绝症患者提供的牧灵关怀。

Clergy Views on a Good Versus a Poor Death: Ministry to the Terminally Ill.

作者信息

LeBaron Virginia T, Cooke Amanda, Resmini Jonathan, Garinther Alexander, Chow Vinca, Quiñones Rebecca, Noveroske Sarah, Baccari Andrew, Smith Patrick T, Peteet John, Balboni Tracy A, Balboni Michael J

机构信息

1 University of Virginia School of Nursing , Charlottesville, Virginia.

3 Beth Israel Deaconness Medical Center , Boston, Massachusetts.

出版信息

J Palliat Med. 2015 Dec;18(12):1000-7. doi: 10.1089/jpm.2015.0176. Epub 2015 Aug 28.

Abstract

BACKGROUND

Clergy are often important sources of guidance for patients and family members making medical decisions at the end-of-life (EOL). Previous research revealed spiritual support by religious communities led to more aggressive care at the EOL, particularly among minority patients. Understanding this phenomenon is important to help address disparities in EOL care.

OBJECTIVE

The study objective was to explore and describe clergy perspectives regarding "good" versus "poor" death within the participant's spiritual tradition.

METHODS

This was a qualitative, descriptive study. Community clergy from various spiritual backgrounds, geographical locations within the United States, and races/ethnicities were recruited. Participants included 35 clergy who participated in one-on-one interviews (N = 14) and two focus groups (N = 21). Semistructured interviews explored clergy viewpoints on factors related to a "good death." Principles of grounded theory were used to identify a final set of themes and subthemes.

RESULTS

A good death was characterized by wholeness and certainty and emphasized being in relationship with God. Conversely, a "poor death" was characterized by separation, doubt, and isolation. Clergy identified four primary determinants of good versus poor death: dignity, preparedness, physical suffering, and community. Participants expressed appreciation for contextual factors that affect the death experience; some described a "middle death," or one that integrates both positive and negative elements. Location of death was not viewed as a significant contributing factor.

CONCLUSIONS

Understanding clergy perspectives regarding quality of death can provide important insights to help improve EOL care, particularly for patients highly engaged with faith communities. These findings can inform initiatives to foster productive relationships between clergy, clinicians, and congregants and reduce health disparities.

摘要

背景

神职人员常常是患者及其家属在临终时做出医疗决策的重要指导来源。先前的研究表明,宗教团体提供的精神支持会导致在临终时采取更积极的治疗措施,尤其是在少数族裔患者中。理解这一现象对于帮助解决临终关怀方面的差异至关重要。

目的

本研究的目的是探讨和描述神职人员在参与者的宗教传统中对“善终”与“恶终”的看法。

方法

这是一项定性的描述性研究。招募了来自不同宗教背景、美国不同地理位置以及不同种族/族裔的社区神职人员。参与者包括35名神职人员,他们参与了一对一访谈(n = 14)和两个焦点小组(n = 21)。半结构化访谈探讨了神职人员对与“善终”相关因素的观点。采用扎根理论原则来确定最终的主题和子主题集。

结果

善终的特点是完整和确定,并强调与上帝建立联系。相反,“恶终”的特点是分离、怀疑和孤立。神职人员确定了善终与恶终的四个主要决定因素:尊严、准备、身体痛苦和社区。参与者对影响死亡体验的背景因素表示赞赏;一些人描述了一种“中间状态的死亡”,即一种融合了积极和消极因素的死亡。死亡地点不被视为一个重要的促成因素。

结论

了解神职人员对死亡质量的看法可以提供重要的见解,以帮助改善临终关怀,特别是对于与宗教团体密切相关的患者。这些发现可以为促进神职人员、临床医生和教友之间建立富有成效的关系以及减少健康差距的倡议提供信息。

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