Sacchetto Beatrice, Aguiar Rita, Vargas-Moniz Maria João, Jorge-Monteiro Maria Fátima, Neves Maria João, Cruz Maria Adelaide, Coimbra José António, Ornelas José
Department of Community Psychology, ISPA-Instituto Universitário.
Portuguese Network of People With Lived Experience of Mental Illness.
Psychiatr Rehabil J. 2016 Mar;39(1):55-61. doi: 10.1037/prj0000153. Epub 2015 Aug 31.
The involvement of people with psychiatric disabilities in research and service evaluation has traditionally been rare, especially in the construction of outcome measures. This study documents a collaborative process with consumers from 2 Portuguese community mental health services in the construction of the Capabilities Questionnaire for the Community Mental Health context (CQ-CMH). The measure is inspired by Nussbaum's capabilities approach and aims to measure consumers' capabilities when supported by the community mental health services.
Focus groups with 50 consumers from 2 programs generated data about their gains from and goals for participation in the programs. A Steering Committee-comprising 3 consumers and 2 researchers-analyzed the data, generated a list of items, sorted them according to Nussbaum's list of capabilities, and developed a rating scale. To check face validity, the questionnaire was tested with 15 consumers.
The collaborative process led to the transformation of traditional research roles, the promotion of empowerment to participants, the ecological validity of the results, and a cultural adaptation of Nussbaum's list to the context of the study. The resulting CQ-CMH is composed of 104 items organized by 10 capabilities, and 1 open-ended question about service improvements.
The capabilities approach and the collaborative process undertaken both support the exercise of choice and control by people with psychiatric disabilities. The capabilities measure-constructed by consumers-may be used as an outcome measure in service evaluation. The questionnaire will undergo further testing of its validity and psychometric qualities.
传统上，患有精神疾病的人很少参与研究和服务评估，尤其是在结果测量的构建方面。本研究记录了与来自葡萄牙两个社区精神卫生服务机构的消费者合作构建社区精神卫生背景下的能力问卷（CQ-CMH）的过程。该测量方法受努斯鲍姆的能力方法启发，旨在衡量社区精神卫生服务提供支持时消费者的能力。
对来自两个项目的50名消费者进行焦点小组访谈，收集他们从项目中获得的收获以及参与项目的目标的数据。一个由3名消费者和2名研究人员组成的指导委员会对数据进行分析，生成项目清单，根据努斯鲍姆的能力清单对项目进行分类，并制定了一个评分量表。为检验表面效度，该问卷在15名消费者中进行了测试。
合作过程导致了传统研究角色的转变，促进了参与者的赋权，结果具有生态效度，并使努斯鲍姆的清单在研究背景下进行了文化适应。最终形成的CQ-CMH由104个项目组成，按10种能力组织，还有1个关于服务改进的开放式问题。
能力方法和所采用的合作过程都支持患有精神疾病的人行使选择权和控制权。由消费者构建的能力测量方法可作为服务评估中的结果测量方法。该问卷将进一步测试其效度和心理测量质量。
