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伊朗癌症信息的披露:患者、家庭成员及医疗专业人员的视角

Disclosure of Cancer Information in Iran: a Perspective of Patients, Family Members, and Health Professionals.

作者信息

Beyraghi N, Mottaghipour Y, Mehraban A, Eslamian E, Esfahani F

机构信息

Neurofunctional and Neurosurgery Research Centre, Shahid Beheshti University of Medical Sciences, Tehran, Iran.

Dept. of Psychiatry, Shahid Beheshti University of Medical Sciences, Tehran, Iran.

出版信息

Iran J Cancer Prev. 2011 Summer;4(3):130-4.

Abstract

BACKGROUND

In the last decades cancer has become one of the important causes of death in Iran .This study examined perspective of a group of Iranian health professionals, patients and patients' family members regarding their view on disclosure of cancer information at a university hospital in Tehran, Iran.

METHODS

The method of study was qualitative semi-structured focused group content analysis. Two group leaders (psychologist and psychiatrist) run the focus groups. Oncologists, nurses, patients and family members participated in separate focus groups. Five group sessions were held to sum up the participants views in four major topics related to disclosure of cancer information to patients and families.

RESULTS

Most of physicians and nurses believed that disclosure of cancer diagnosis is a mistake. Family members think that it should be delivered gradually during stages of therapy based on patient's psychological state, but most of the patients consider truth telling as a patient right. All physicians, most of nurses and all the patients see the physician as a person responsible to break the diagnostic disclosure. All patients wanted the physicians to take the total control of decision-making process for their treatment.

CONCLUSION

Iranian physicians and nurses hesitate to disclose cancer diagnosis compared to patients, who want to know the truth. Patients, nurses and physicians consider the physician to be the person responsible for delivering the information of cancer diagnosis .Development and implementation of a protocol based on Iranian culture is a necessity.

摘要

背景

在过去几十年中,癌症已成为伊朗重要的死因之一。本研究调查了一组伊朗医疗专业人员、患者及其家属对伊朗德黑兰一家大学医院癌症信息披露的看法。

方法

研究方法为定性半结构化焦点小组内容分析。两名小组组长(心理学家和精神科医生)主持焦点小组。肿瘤学家、护士、患者和家属分别参加焦点小组。共举行了五次小组会议,以总结参与者在与向患者及其家属披露癌症信息相关的四个主要主题上的观点。

结果

大多数医生和护士认为披露癌症诊断是一个错误。家属认为应根据患者的心理状态在治疗阶段逐步告知,但大多数患者认为告知真相是患者的权利。所有医生、大多数护士和所有患者都认为医生是负责披露诊断结果的人。所有患者都希望医生完全掌控其治疗决策过程。

结论

与想知道真相的患者相比,伊朗医生和护士在披露癌症诊断方面犹豫不决。患者、护士和医生都认为医生是负责传达癌症诊断信息的人。有必要制定并实施基于伊朗文化的方案。

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