青少年特发性关节炎患者对足部残疾的认知：青少年关节炎足部残疾指数与牛津儿童踝足问卷的比较

Patient perceptions of foot disability in Juvenile Idiopathic Arthritis: a comparison of the juvenile arthritis foot disability index and the Oxford ankle foot questionnaire for children.

作者信息

Ferrari Jill

机构信息

Department of Health, Sport & Bioscience, University of East London, Stratford, London, E15 4LZ UK ; Department of Paediatric Rheumatology, Hospital for Sick Children, Great Ormond Street, London, WC1 UK.

出版信息

J Foot Ankle Res. 2015 Sep 10;8:50. doi: 10.1186/s13047-015-0106-5. eCollection 2015.

DOI:10.1186/s13047-015-0106-5

PMID:26366202

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4566518/

Abstract

BACKGROUND

The Juvenile Arthritis Foot Disability Index (JAFI) and the Oxford Ankle Foot Questionnaire for Children (OxAFQ-C) are two region-specific paediatric outcome tools that measure the impact on well-being in children with foot pathology. The aim of this study was to establish the level of agreement between the JAFI and the OxAFQ-C in a group of children diagnosed with Juvenile Idiopathic Arthritis (JIA).

METHODS

Children with JIA accessed the questionnaire via a website. The OxAFQ-C questionnaire and the JAFI questionnaire were combined into one document consisting of 42 statements with Likert-scale responses. A further question regarding duration of disease was added. On completion, the web-linked questionnaire was returned by e-mail.

RESULTS

Thirty five participants were included. Individual domain and composite score analysis was undertaken. The JAFI participation domain was compared to the OxAFQ-C school domain and showed no significant difference between the median scores of each participant (z = -1.33, p = 0.181). The JAFI activity and the OxAFQ-C physical domains were compared and showed that a significant difference between the median scores existed (z = -4.29, p < 0.001). Agreement between the two PROMs was tested using Bland Altman Levels of Agreement based upon the percentage summed composite scores. Levels of agreement between the scores were considered to be poor based on the Bland Altman plot, despite a low mean difference in scores (mean difference = -3.88, SD of difference = 9.93, p = 0.027). Pearson correlation was undertaken to measure the relationship between the summed composite score and disease duration. No relationship was found (JAFI: r = -0.08, p = 0.672; OxAFQ-C: r = 0.037, p = 0.871).

CONCLUSIONS

This study has shown that despite some agreement between the individual domains, overall there is poor agreement between the OxAFQ-C and the JAFI percentage summed composite scores. The study is not able to determine if one score is superior to the other but both scores could be of value when used in this population.

摘要

背景

青少年关节炎足部残疾指数（JAFI）和牛津儿童踝足问卷（OxAFQ - C）是两种针对特定区域的儿科结局工具，用于衡量足部病变儿童的健康状况。本研究的目的是确定在一组被诊断为幼年特发性关节炎（JIA）的儿童中，JAFI和OxAFQ - C之间的一致性水平。

方法

患JIA的儿童通过网站访问问卷。OxAFQ - C问卷和JAFI问卷合并为一个包含42条陈述且采用李克特量表作答的文档。另外增加了一个关于疾病持续时间的问题。完成后，通过电子邮件返回网络链接问卷。

结果

纳入了35名参与者。进行了个体领域和综合得分分析。将JAFI参与领域与OxAFQ - C学校领域进行比较，各参与者的中位数得分之间无显著差异（z = -1.33，p = 0.181）。对JAFI活动领域和OxAFQ - C身体领域进行比较，结果显示中位数得分存在显著差异（z = -4.29，p < 0.001）。基于综合得分百分比，使用布兰德 - 奥特曼一致性水平对两种患者报告结局测量工具（PROMs）之间的一致性进行检验。尽管得分的平均差异较低（平均差异 = -3.88，差异标准差 = 9.93，p = 0.027），但根据布兰德 - 奥特曼图，得分之间的一致性水平被认为较差。采用皮尔逊相关性分析来测量综合得分总和与疾病持续时间之间的关系。未发现相关性（JAFI：r = -0.08，p = 0.672；OxAFQ - C：r = 0.037，p = 0.871）。