Veenstra-van Schie Monique Theodora Maria, Coenen Kelly, Koopman Hendrik Maria, Versteegh Florens Gerard Adriaan
Groene Hart Ziekenhuis, Department of Pediatrics, Gouda, the Netherlands.
Leiden University, Department of Clinical Psychology, Leiden, the Netherlands.
Pan Afr Med J. 2015 May 8;21:18. doi: 10.11604/pamj.2015.21.18.6191. eCollection 2015.
We explored the differences in the perceived HRQoL between children with asthma from Moroccan and Dutch descent and their parents. In total 33 children (aged 6-18 years) from Moroccan (16) and Dutch descent (17) and their parents participated. All children were currently under treatment in a general hospital in the Netherlands. Generic and asthma specific HRQoL were assessed (DUX-25, DISABKIDS, PAQLQ). Significant differences were found on the DUX-25 subscales physical, emotional and home functioning. Children and parents from Dutch descent reported a lower HRQoL. The findings of this study are contrary with previous research. Results can be explained by the individualistic-collectivistic dimension, socially desirability, language and the feeling of miscomprehension. If this explanation makes sense health care workers have to invest in a good relationship with especially immigrant children and their parents, so they will have enough confidence to talk more openly about their physical as well as their psycho-social complaints.
我们探究了摩洛哥裔和荷兰裔哮喘儿童及其父母在感知健康相关生活质量（HRQoL）方面的差异。共有33名6至18岁的儿童及其父母参与，其中摩洛哥裔儿童16名，荷兰裔儿童17名。所有儿童目前都在荷兰的一家综合医院接受治疗。评估了一般健康相关生活质量和哮喘特异性健康相关生活质量（DUX - 25、残疾儿童量表、儿童哮喘生活质量问卷）。在DUX - 25量表的身体、情绪和家庭功能子量表上发现了显著差异。荷兰裔儿童及其父母报告的健康相关生活质量较低。本研究的结果与先前的研究相反。结果可以用个人主义 - 集体主义维度、社会期望、语言以及误解感来解释。如果这种解释合理，医护人员必须努力与尤其是移民儿童及其父母建立良好关系，这样他们就会有足够的信心更公开地谈论他们的身体以及心理社会方面的不适。
