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值得信赖的研究机构:研究智力遗传学的棘手案例。

Trustworthy Research Institutions: The Challenging Case of Studying the Genetics of Intelligence.

作者信息

Johnston Josephine, Banerjee Mohini P, Geller Gail

出版信息

Hastings Cent Rep. 2015 Sep-Oct;45(5 Suppl):S59-65. doi: 10.1002/hast.501.

DOI:10.1002/hast.501
PMID:26413951
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9756138/
Abstract

It is simple enough to claim that academic research institutions ought to be trustworthy. Building the culture and taking the steps necessary to earn and preserve institutional trust are, however, complex processes. The experience motivating this special report--a request for the Center for Talented Youth at Johns Hopkins University to collaborate on research regarding the genetics of intelligence--illustrates how ensuring institutional trustworthiness can be in tension with a commitment to fostering research. In this essay, we explore the historical context for biomedical research institutions like Johns Hopkins that have worked to build local community trust. In so doing, we consider how the example under focus in this special report can lead to greater consideration of how research institutions balance fostering trust with their other commitments.

摘要

宣称学术研究机构应该值得信赖是很简单的。然而,营造一种文化并采取必要措施来赢得和维护机构的信任却是复杂的过程。促使撰写这份特别报告的经历——约翰霍普金斯大学天才少年中心收到关于开展智力遗传学研究合作的请求——说明了确保机构的可信度可能与促进研究的承诺存在冲突。在本文中,我们探讨了像约翰霍普金斯这样努力建立当地社区信任的生物医学研究机构的历史背景。在此过程中,我们思考这份特别报告所关注的案例如何能促使人们更多地思考研究机构如何在促进信任与履行其他承诺之间取得平衡。

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Trustworthy Research Institutions: The Challenging Case of Studying the Genetics of Intelligence.值得信赖的研究机构:研究智力遗传学的棘手案例。
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Obligations and Concerns of an Organization Like the Center for Talented Youth.像天才青年中心这样一个组织的义务与关切。
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Taking a Stand: The Genetics Community's Responsibility for Intelligence Research.表明立场:遗传学领域对智力研究的责任。
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引用本文的文献

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Determinants of Trustworthiness to Conduct Medical Research: Findings from Focus Groups Conducted with Racially and Ethnically Diverse Adults.开展医学研究的可信度决定因素:与不同种族和族裔成年人进行的焦点小组研究结果
J Gen Intern Med. 2020 Oct;35(10):2969-2975. doi: 10.1007/s11606-020-05868-1. Epub 2020 Jun 3.

本文引用的文献

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Data fraud in clinical trials.临床试验中的数据欺诈。
Clin Investig (Lond). 2015;5(2):161-173. doi: 10.4155/cli.14.116.
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Why we need community engagement in medical research.为什么我们需要社区参与医学研究。
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Different types of distrust in clinical research among whites and African Americans.白人和非裔美国人对临床研究的不同类型的不信任。
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