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Psychosocial risk in families of infants undergoing surgery for a serious congenital heart disease.患有严重先天性心脏病的婴儿接受手术的家庭中的心理社会风险。
Cardiol Young. 2014 Aug;24(4):632-9. doi: 10.1017/S1047951113000760. Epub 2013 Jun 27.
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The impact of socio-economic status on health related quality of life for children and adolescents with heart disease.社会经济地位对心脏病患儿和青少年健康相关生活质量的影响。
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Neurodevelopmental outcomes in children with congenital heart disease: evaluation and management: a scientific statement from the American Heart Association.先天性心脏病患儿的神经发育结局:评估和管理——美国心脏协会的科学声明。
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Changing mortality in congenital heart disease.先天性心脏病死亡率的变化。
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Psychosocial considerations for children and young adolescents with implantable cardioverter defibrillators: an update.植入式心脏复律除颤器患儿及青少年的社会心理因素:最新进展
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Comparison of the PSC-17 and alternative mental health screens in an at-risk primary care sample.在一个处于风险中的初级保健样本中对PSC-17与其他心理健康筛查工具的比较。
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儿科心脏病诊所的系统心理社会筛查:儿童症状清单17的临床效用

Systematic psychosocial screening in a paediatric cardiology clinic: clinical utility of the Pediatric Symptom Checklist 17.

作者信息

Struemph Kari L, Barhight Lydia R, Thacker Deepika, Sood Erica

机构信息

1Division of Behavioral Health,Nemours/Alfred I. duPont Hospital for Children,Wilmington,Delaware,United States of America.

2Nemours Cardiac Center,Nemours/Alfred I. duPont Hospital for Children,Wilmington,Delaware,United States of America.

出版信息

Cardiol Young. 2016 Aug;26(6):1130-6. doi: 10.1017/S1047951115001900. Epub 2015 Oct 1.

DOI:10.1017/S1047951115001900
PMID:26423220
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5621735/
Abstract

OBJECTIVE

To examine the clinical utility of the Pediatric Symptom Checklist 17 for identifying psychosocial concerns and improving access to psychology services within a paediatric cardiology clinic.

METHOD

Parents of 561 children (aged 4-17 years) presenting for follow-up of CHD, acquired heart disease, or arrhythmia completed the Pediatric Symptom Checklist 17 as part of routine care; three items assessing parental (1) concern for learning/development, (2) questions about adjustment to cardiac diagnosis, and (3) interest in discussing concerns with a behavioural healthcare specialist were added to the questionnaire. A psychologist contacted the parents by phone if they indicated interest in speaking with a behavioural healthcare specialist.

RESULTS

Percentages of children scoring above clinical cut-offs for externalising (10.5%), attention (8.7%), and total (9.3%) problems were similar to a "normative" primary-care sample, whereas fewer children in this study scored above the cut-off for internalising problems (7.8%; p<0.01). Sociodemographic, but not clinical, characteristics were associated with Pediatric Symptom Checklist 17 scores. 17% of the parents endorsed concerns about learning/development, and 20% endorsed questions about adjustment to diagnosis. History of cardiac surgery was associated with increased concern about learning/development (p<0.01). Only 37% of the parents expressing psychosocial concerns reported interest in speaking with a psychologist.

CONCLUSIONS

The Pediatric Symptom Checklist 17 may not be sensitive to specific difficulties experienced by this patient population. A questionnaire with greater focus on learning/development and adjustment to diagnosis may yield improved utility. Psychology integration in clinics serving high-risk cardiac patients may decrease barriers to behavioural healthcare services.

摘要

目的

探讨儿童症状清单17在识别心理社会问题及改善儿科心脏病诊所心理服务可及性方面的临床效用。

方法

561名患有先天性心脏病(CHD)、后天性心脏病或心律失常并前来接受随访的4至17岁儿童的家长,在常规护理过程中完成了儿童症状清单17;问卷中增加了三项评估家长的内容:(1)对学习/发育的关注,(2)对心脏诊断适应情况的疑问,以及(3)与行为健康专家讨论相关问题的意愿。如果家长表示有兴趣与行为健康专家交谈,心理医生会通过电话与他们联系。

结果

外化问题(10.5%)、注意力问题(8.7%)及总问题(9.3%)得分高于临床临界值的儿童比例,与“标准”初级保健样本相似,而本研究中内化问题得分高于临界值的儿童较少(7.8%;p<0.01)。社会人口统计学特征而非临床特征与儿童症状清单17得分相关。17%的家长认可对学习/发育的担忧,20%认可对诊断适应情况的疑问。心脏手术史与对学习/发育的担忧增加相关(p<0.01)。在表达心理社会问题的家长中,只有37%表示有兴趣与心理医生交谈。

结论

儿童症状清单17可能对该患者群体所经历的特定困难不敏感。一份更关注学习/发育及诊断适应情况的问卷可能会有更高的效用。在为高危心脏病患者服务的诊所中整合心理服务,可能会减少行为健康服务的障碍。