Vilaseca Rosa, Gràcia Marta, Beltran Francesc S, Dalmau Mariona, Alomar Elisabeth, Adam-Alcocer Ana Luisa, Simó-Pinatella David
Department of Developmental and Educational Psychology, University of Barcelona, Barcelona, Spain.
Ramon LLull University, Barcelona, Spain.
J Appl Res Intellect Disabil. 2017 Jan;30(1):33-46. doi: 10.1111/jar.12215. Epub 2015 Sep 30.
The study assesses the support needs of individuals with intellectual disability and their families in Catalonia. The present authors examine family quality of life (FQoL), identify the individual services required and assess families' perceptions of the extent to which their family member with intellectual disability and they themselves receive the services they need.
The N&S questionnaire (Needs and Supports for people with intellectual disability and their families) was administered to 2160 families with a family member with intellectual disability aged under 70 in Catalonia (Spain).
Overall mean FQoL was quite high. FQoL was associated with family income, education, employment and percentage level of disability. Neither people with intellectual disability nor their families receive the specific support they need.
Besides providing specific support for individuals with intellectual disability, local policymakers and practitioners should apply a family-centred approach to the provision of support for families in order to improve FQoL.
该研究评估了加泰罗尼亚地区智障人士及其家庭的支持需求。本文作者考察了家庭生活质量（FQoL），确定了所需的个人服务，并评估了家庭对于其智障家庭成员以及他们自身获得所需服务程度的看法。
对西班牙加泰罗尼亚地区2160名有70岁以下智障家庭成员的家庭进行了N&S问卷调查（智障人士及其家庭的需求与支持）。
总体家庭生活质量平均水平相当高。家庭生活质量与家庭收入、教育程度、就业情况以及残疾百分比水平相关。智障人士及其家庭均未获得他们所需的特定支持。
除了为智障人士提供特定支持外，地方政策制定者和从业者应采用以家庭为中心的方法为家庭提供支持，以提高家庭生活质量。
