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患者借助新技术成为自身健康与疾病个人数据的管理者——护理教育面临的挑战

A patient as a self-manager of their personal data on health and disease with new technology--challenges for nursing education.

作者信息

Hopia Hanna, Punna Mari, Laitinen Teemu, Latvala Eila

机构信息

JAMK University of Applied Sciences, Jyvaskyla Finland.

出版信息

Nurse Educ Today. 2015 Dec;35(12):e1-3. doi: 10.1016/j.nedt.2015.08.017. Epub 2015 Aug 28.

Abstract

Background: Digital technologies have transformed nearly every aspect of our lives. However, for many of us, they have not yet improved the way we receive or participate in our health services and disease care. Hostetter et al. (2014) explore in a new multimedia essay the changes occurring with the arrival of new digital tools, from mobile apps and data-driven software solutions to wearable sensors that transmit information to a patient's team of health care providers. Digitisation will revolutionise health technology to a new extent, as the self-measurement, cloud services, teleconsultation and robotics technologies are being used to get health expenditure under control. In the future, robots will dispense drugs, and treatment routines will utilise cloud services (Biesdorf and Niedermann, 2014; Grain and Sharper, 2013). According to the rationale of the Horizon 2020 (European Commission, 2013b) work programme, personalising health and care has been stated to empower citizens and patients to manage their own health and disease, which can result in more cost-effective healthcare systems by enabling the management of chronic diseases outside institutions, improving health outcomes, and by encouraging healthy citizens to remain so. Solutions should be developed and tested with the use of open innovation platforms, such as large-scale demonstrators for health and service innovation. It is a fact that ICT/new health technology and personal health applications are transforming patients' self-management in many ways. A huge amount of personal health application solutions are being offered in the marketplace, which engage in activities that promote health, monitoring the symptoms and signs of illness, and managing the impact of illness (European Commission eHealth Action Plan 2012-2020, 2012). The WHO (2011) has conducted a comprehensive study and published a report on Member States' use of mHealth (mobile Health) as well as the readiness and barriers to its use. The percentage of countries reporting that they had formally evaluated mHealth initiatives was 12%. Seven per cent of developing countries reported conducting a mHealth evaluation. Mobile technologies have already changed, and they will continue to change the lives of millions around the world. In the WHO's report, it was estimated that mHealth can revolutionise health and well-being outcomes if implemented strategically and systematically, thereby providing virtually anyone with a mobile phone with health and well-being expertise and knowledge in real-time. In the research reports (European Commission eHealth Action Plan 2012-2020, 2012; Blake, 2013), it was reported that mobile phones as a tool are cost-effective and wide reaching, while they easily target large samples and hard-to-reach groups. Studies show that eHealth as a way to self-monitor and self-manage as well as supportive interventions for clients offers a good possibility to bridge the gap between inpatient and outpatient care. The mobile phone is especially effective in enhancing the therapist-patient bond so that this does not collapse when the client leaves the therapist's consulting room. Furthermore, eHealth applications can assist the client to cope with everyday situations in an autonomous way while improving the transfer of the abilities acquired by the client in the health care setting to everyday life. The findings of various projects (European Commission eHealth Action Plan 2012-2020, 2012; European Commission, 2012; European Commission, 2013b; Hämäläinen, 2013) provide an opportunity for an open discussion regarding the digital health revolution, which will change health care processes and citizens' applications for health promotion and self-care.

摘要

背景

数字技术已经改变了我们生活的几乎方方面面。然而,对我们许多人来说,它们尚未改善我们接受或参与医疗服务及疾病护理的方式。霍斯泰特等人(2014年)在一篇新的多媒体文章中探讨了随着新数字工具的出现所发生的变化,从移动应用程序和数据驱动的软件解决方案到可将信息传输给患者医疗服务提供团队的可穿戴传感器。数字化将在新的程度上彻底改变健康技术,因为自我测量、云服务、远程会诊和机器人技术正被用于控制医疗支出。未来,机器人将分发药物,治疗程序将利用云服务(比耶斯多夫和尼德曼,2014年;格兰和夏普,2013年)。根据“地平线2020”(欧盟委员会,2013b)工作计划的基本原理,个性化健康与护理旨在赋予公民和患者管理自身健康和疾病的能力,这可通过在机构外管理慢性病、改善健康结果以及鼓励健康公民保持健康来实现更具成本效益的医疗系统。应利用开放式创新平台来开发和测试解决方案,例如用于健康与服务创新的大规模示范项目。事实上,信息通信技术/新健康技术和个人健康应用正在许多方面改变患者的自我管理。市场上正在提供大量的个人健康应用解决方案,这些方案从事促进健康、监测疾病症状和体征以及管理疾病影响的活动(欧盟委员会《2012 - 2020年电子健康行动计划》,2012年)。世界卫生组织(2011年)进行了一项全面研究,并发布了一份关于成员国对移动健康(mHealth)的使用情况以及使用的准备情况和障碍的报告。报告称已对移动健康举措进行正式评估的国家比例为12%。7%的发展中国家报告开展了移动健康评估。移动技术已经改变,并且将继续改变世界各地数百万人的生活。在世界卫生组织的报告中,据估计,如果战略且系统地实施,移动健康可彻底改变健康和幸福状况,从而几乎为任何拥有手机的人实时提供健康和幸福方面的专业知识。在研究报告(欧盟委员会《2012 - 2020年电子健康行动计划》,2012年;布莱克,2013年)中,据报道手机作为一种工具具有成本效益且覆盖面广,同时它们能够轻松针对大样本和难以接触到的群体。研究表明,电子健康作为一种自我监测、自我管理以及为客户提供支持性干预的方式,为弥合住院护理和门诊护理之间的差距提供了很好的可能性。手机在增强治疗师与患者的联系方面特别有效,这样当患者离开治疗师的咨询室时这种联系不会中断。此外,电子健康应用程序可以帮助客户以自主的方式应对日常情况,同时改善客户在医疗环境中获得的能力向日常生活的转化。各个项目(欧盟委员会《2012 - 2020年电子健康行动计划》,2012年;欧盟委员会,2012年;欧盟委员会,2013b;哈迈莱宁,2013年)的研究结果为就数字健康革命展开公开讨论提供了契机,这场革命将改变医疗保健流程以及公民在健康促进和自我护理方面的应用。

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