Newman Christy E, Persson Asha, Miller Angela, Brown Rebecca J
a Centre for Social Research in Health , UNSW Australia , Sydney , Australia.
b Short St Centre Sexual Health Service , South East Sydney Local Health District , Sydney , Australia.
AIDS Care. 2016;28(1):131-6. doi: 10.1080/09540121.2015.1069790. Epub 2015 Oct 18.
Young people who have grown up with perinatally acquired HIV in wealthy nations are increasingly transitioning into adult care settings which expect more independence and self-regulation than paediatric care. Drawing on the first qualitative study on growing up with HIV in Australia, this paper examines "responsibilisation" narratives in semi-structured interviews conducted with young people with HIV and their paediatric and adult care providers. Three dominant narratives were identified: responsibilisation as imperative, practice and contest. This suggests that while young people growing up with HIV in an advanced liberal setting such as Australia may value the independence of adult care, and appreciate the need to take responsibility for their health, the practices involved in becoming a responsible health citizen are shaped by individual histories and circumstances, and in some cases, can lead to serious contestation and conflict with care providers. Placing a stronger emphasis on what young people can gain from taking an active role in managing their health may more successfully foster responsibilisation, rather than focusing on what they will lose. Clinicians could benefit from greater support regarding how to engage young people with the elements of responsibilisation likely to resonate more meaningfully at different points in their lives.
在富裕国家,那些在围产期感染艾滋病毒的年轻人正越来越多地过渡到成人护理环境中,这种环境比儿科护理更期望患者具备独立性和自我管理能力。基于澳大利亚第一项关于艾滋病毒感染者成长经历的定性研究,本文考察了对感染艾滋病毒的年轻人及其儿科和成人护理提供者进行的半结构化访谈中的“责任化”叙事。研究确定了三种主要叙事:责任化是必要的、实践的和有争议的。这表明,在澳大利亚这样的高度自由主义环境中,感染艾滋病毒长大的年轻人可能重视成人护理的独立性,并意识到对自身健康负责的必要性,但成为有责任感的健康公民所涉及的实践受到个人经历和具体情况的影响,在某些情况下,还可能导致与护理提供者的严重争议和冲突。更加强调年轻人积极参与管理自身健康能获得什么,可能比关注他们会失去什么更能成功地促进责任化。临床医生在如何让年轻人参与责任化要素方面可能会受益于更多支持,这些要素在他们生命的不同阶段可能会产生更有意义的共鸣。