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巴西南部乳糜泻患者的生活质量评估

QUALITY OF LIFE EVALUATION IN CELIAC PATIENTS FROM SOUTHERN BRAZIL.

作者信息

Castilhos Amélia C, Gonçalves Bárbara C, Silva Manoella Macedo e, Lanzoni Laura A, Metzger Letícia R, Kotze Lorete M S, Nisihara Renato M

机构信息

Departamento de Medicina, Universidade Positivo, Curitiba, PR, BR.

Serviço de Gastroenterologia, Pontifícia Universidade Católica do Paraná, Curitiba, PR, BR.

出版信息

Arq Gastroenterol. 2015 Jul-Sep;52(3):171-5. doi: 10.1590/S0004-28032015000300003.

Abstract

BACKGROUND

Restrictions imposed by the gluten-free diet generate large changes in the daily habits of the celiac patient, causing a negative impact on quality of life.

OBJECTIVE

This study aimed to evaluate the quality of life of patients with celiac disease on a capital in Southern Brazil.

METHODS

Patients older than 18 years were included, with confirmed celiac disease for at least 60 days in the period from June to October 2013. A validated questionnaire, with specific questions to assess the patient's quality of life celiac was applied. A total score ranged from 20 to 100 points; the higher the score, worse quality of life.

RESULTS

A total of 103 questionnaires were evaluated, 96 (93.2%) female, with average score 56.6±12.35 (28 to 88 points). The comparison between the questionnaire scores and family income was not significant (P=0.139). Patients diagnosed less than 1 year have poorer quality of life than those with more than 10 years (P=0.063). Patients older than 60 years had better quality of life compared with the younger ones (P=0.04).

CONCLUSION

There was no association between quality of life and factors such as family income, length of diet and age at diagnosis. Chronological age greater than 60 years has positively influenced the quality of life of celiac patients.

摘要

背景

无麸质饮食带来的限制使乳糜泻患者的日常习惯发生了很大变化,对生活质量产生了负面影响。

目的

本研究旨在评估巴西南部某省会城市乳糜泻患者的生活质量。

方法

纳入年龄大于18岁的患者,这些患者在2013年6月至10月期间确诊为乳糜泻至少60天。应用一份经过验证的问卷,其中包含评估乳糜泻患者生活质量的特定问题。总分范围为20至100分;分数越高,生活质量越差。

结果

共评估了103份问卷,其中96份(93.2%)为女性,平均得分56.6±12.35(28至88分)。问卷得分与家庭收入之间的比较无显著差异(P = 0.139)。诊断时间少于1年的患者生活质量比诊断时间超过10年的患者差(P = 0.063)。60岁以上的患者与年轻患者相比生活质量更好(P = 0.04)。

结论

生活质量与家庭收入、饮食时长和诊断年龄等因素之间没有关联。实际年龄大于60岁对乳糜泻患者的生活质量有积极影响。

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