Liptak Gregory S, Robinson Laura M, Davidson Philip W, Dziorny Adam, Lavalley Rebecca, Flaherty Mary Grace, Dosa Nienke P
State University of New York Upstate Medical University, Syracuse, NY, USA.
The School of Medicine and Dentistry, University of Rochester, Rochester, NY, USA.
Dev Med Child Neurol. 2016 Jul;58(7):714-20. doi: 10.1111/dmcn.12952. Epub 2015 Nov 2.
To evaluate the prevalence of organ system disorders and describe healthcare utilization among adults with spina bifida at a regional clinic.
This study was a structured chart review using the Rochester Health Status Survey-IV. 65 males, 57 females aged 16 to 59 years were seen at the Spina Bifida Center of Central New York between January 2007 and December 2008 (annual hospitalization rate was 15 out of 100).
Hospitalizations and acute outpatient visits were associated with having shunted hydrocephalus, whereas visits to the emergency department were associated with having a decubitus ulcer. Logistic regression models revealed that older adults made proportionately fewer visits to primary care providers than younger adults (odds ratio 0.919; p=0.02). Yet for every 1-year increase in age, the odds of being hospitalized increased by 5% (odds ratio 1.051; p=0.03).
Adults with spina bifida have multiple organ-system disorders. They have greater difficulty accessing services, and utilize emergency and inpatient healthcare at higher rates than the general population. In the future, adults with spina bifida will require access to more medical care and preventive services if they are to have optimal health, well-being, and functioning.
评估区域诊所中患有脊柱裂的成年人器官系统疾病的患病率，并描述其医疗保健利用情况。
本研究采用罗切斯特健康状况调查-IV进行结构化图表审查。2007年1月至2008年12月期间，纽约中部脊柱裂中心接待了65名男性和57名年龄在16至59岁之间的女性（年住院率为每100人中有15人）。
住院和急性门诊就诊与患有分流性脑积水有关，而急诊就诊与患有褥疮有关。逻辑回归模型显示，老年人到初级保健提供者处就诊的比例比年轻人少（优势比0.919；p=0.02）。然而，年龄每增加1岁，住院几率增加5%（优势比1.051；p=0.03）。
患有脊柱裂的成年人有多种器官系统疾病。他们获得服务的难度更大，并且比一般人群更多地利用急诊和住院医疗服务。未来，如果患有脊柱裂的成年人想要拥有最佳的健康、幸福和功能，将需要获得更多的医疗护理和预防服务。
