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成年烧伤幸存者的烧伤经历及烧伤后健康状况:一项定性分析。

Adult survivors' lived experience of burns and post-burn health: A qualitative analysis.

作者信息

Abrams Thereasa E, Ogletree Roberta J, Ratnapradipa Dhitinut, Neumeister Michael W

机构信息

Southern Illinois University School of Medicine, Institute for Plastic Surgery, United States.

Southern Illinois University at Carbondale, United States.

出版信息

Burns. 2016 Feb;42(1):152-162. doi: 10.1016/j.burns.2015.09.011. Epub 2015 Oct 29.

DOI:10.1016/j.burns.2015.09.011
PMID:26527372
Abstract

INTRODUCTION

The individual implications of major burns are likely to affect the full spectrum of patients' physical, emotional, psychological, social, environmental, spiritual and vocational health. Yet, not all of the post-burn health implications are inevitably negative. Utilizing a qualitative approach, this heuristic phenomenological study explores the experiences and perceptions early (ages 18-35) and midlife (ages 36-64) adults providing insight for how participants perceived their burns in relationship to their post-burn health.

METHODS

Participants were interviewed using semi-structured interview questions framed around seven domains of health. Interview recordings were transcribed verbatim then coded line by line, identifying dominant categories related to health. Categories were analyzed identifying shared themes among the study sample.

RESULTS

Participants were Caucasian, seven males and one female. Mean age at time of interviews was 54.38 and 42.38 at time of burns. Mean time since burns occurred was 9.38 years with a minimum of (20%) total body surface area (TBSA) burns. Qualitative content analysis rendered three emergent health-related categories and associated themes that represented shared meanings within the participant sample. The category of "Physical Health" reflected the theme physical limitations, pain and sensitivity to temperature. Within the category of "Intellectual Health" were themes of insight, goal setting and self-efficacy, optimism and humor and within "Emotional Health" were the themes empathy and gratitude.

CONCLUSIONS

By exploring subjective experiences and perceptions of health shared through dialog with experienced burned persons, there are opportunities to develop a more complete picture of how holistic health may be affected by major burns that in turn could support future long-term rehabilitative trajectories of early and midlife adult burn patients.

摘要

引言

大面积烧伤对个体的影响可能涉及患者身体、情感、心理、社会、环境、精神和职业健康的各个方面。然而,并非所有烧伤后的健康影响都必然是负面的。本启发式现象学研究采用定性方法,探索了青年(18 - 35岁)和中年(36 - 64岁)成年人的经历和看法,为参与者如何看待烧伤与其烧伤后健康之间的关系提供了见解。

方法

采用围绕七个健康领域构建的半结构化访谈问题对参与者进行访谈。访谈录音逐字转录,然后逐行编码,确定与健康相关的主要类别。对类别进行分析,以识别研究样本中的共同主题。

结果

参与者均为白种人,七名男性和一名女性。访谈时的平均年龄为54.38岁,烧伤时的平均年龄为42.38岁。自烧伤发生以来的平均时间为9.38年,至少20%的体表面积(TBSA)烧伤。定性内容分析产生了三个与健康相关的新出现类别及相关主题,这些主题代表了参与者样本中的共同意义。“身体健康”类别反映了身体限制、疼痛和对温度敏感的主题。“智力健康”类别中的主题包括洞察力、目标设定和自我效能感、乐观和幽默,“情感健康”类别中的主题是同理心和感恩。

结论

通过探索与有烧伤经历者对话中分享的健康主观体验和认知,有机会更全面地了解大面积烧伤如何影响整体健康,进而为青年和中年成年烧伤患者未来的长期康复轨迹提供支持。

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