中文互联网搜索向癫痫患者提供不准确且具误导性的信息。
Chinese Internet Searches Provide Inaccurate and Misleading Information to Epilepsy Patients.
作者信息
Liu Jian-Ming, Xu Ru-Xiang, Hu Yong-Sheng, Ren Lian-Kun, Qiao Hui, Ding Hu, Liu Zhi-Liang
机构信息
Affiliated Bayi Brain Hospital, Bayi Clinical College, Southern Medical University, Beijing 100700, China.
出版信息
Chin Med J (Engl). 2015 Dec 20;128(24):3324-8. doi: 10.4103/0366-6999.171425.
BACKGROUND
Most patients with epilepsy want to learn as much as possible about the disease, and many have turned to the internet for information. Patients are likely to use information obtained from the internet to control their epilepsy, but little is known about the accuracy of this information. In this survey, we have assessed the feasibility and usability of internet-based interventions for the treatment of epilepsy.
METHODS
Data were collected from an internet search. Different search terms were used to obtain general information on epilepsy together with information about medication, types of epilepsy, treatment, women's health, and other information. The accuracy of the information was evaluated by a group of experts.
RESULTS
A total of 1320 web pages were assessed. The majority were websites related to health. A large number (80.2%) of web pages contained content related to the search term. A significant number of web pages 450/1058 (42.5%) claimed to provide information from a credible source; however, only 206/1058 (19.5%) of the information was accurate and complete; 326/1058 (30.8%) was accurate but incomplete; 328/1058 (31.0%) was correct but nonstandard, and 198/1058 (18.8%) was inaccurate. The authenticity of the information was not significantly different between the two search engines (χ2 = 0.009, P = 0.924). No significant difference was observed in the information obtained from a specialist or nonspecialist source (χ2 = 7.538, P = 0.057). There was also no correlation between the quality of the information and the priority (χ2 = 6.880, P = 0.076).
CONCLUSIONS
Searching for information about epilepsy on the internet is convenient, but the information provided is not reliable. Too much information is inaccurate or for advertisement purposes, and it is difficult for patients to find the useful information. Turning to the internet for medical knowledge may be harmful. Physicians should be aware that their patients may search for information on the internet and guide them to safe, reputable websites.
背景
大多数癫痫患者希望尽可能多地了解该疾病，许多人已转向互联网获取信息。患者可能会使用从互联网上获得的信息来控制自己的癫痫，但对这些信息的准确性知之甚少。在这项调查中，我们评估了基于互联网的癫痫治疗干预措施的可行性和可用性。
方法
通过互联网搜索收集数据。使用不同的搜索词来获取有关癫痫的一般信息以及有关药物、癫痫类型、治疗、女性健康和其他信息。信息的准确性由一组专家进行评估。
结果
共评估了1320个网页。大多数是与健康相关的网站。大量（80.2%）网页包含与搜索词相关的内容。相当数量的网页450/1058（42.5%）声称提供来自可靠来源的信息；然而，只有206/1058（19.5%）的信息准确且完整；326/1058（30.8%）准确但不完整；328/1058（31.0%）正确但不规范，198/1058（18.8%）不准确。两个搜索引擎之间信息的真实性没有显著差异（χ2 = 0.009，P = 0.924）。从专科或非专科来源获得的信息没有观察到显著差异（χ2 = 7.538，P = 0.057）。信息质量与优先级之间也没有相关性（χ2 = 6.880，P = 0.076）。
结论
在互联网上搜索有关癫痫的信息很方便，但所提供的信息不可靠。太多信息不准确或用于广告目的，患者很难找到有用的信息。转向互联网获取医学知识可能有害。医生应意识到他们的患者可能会在互联网上搜索信息，并引导他们访问安全、信誉良好的网站。
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