Arya Vandana, Gehlawat Virender Kumar, Kaushik Jaya Shankar, Gathwala Geeta
Department of Pediatrics, Pt. B D Sharma Postgraduate Institute of Medical Sciences, Rohtak, Haryana, India.
J Pediatr Neurosci. 2014 Jan;9(1):17-20. doi: 10.4103/1817-1745.131473.
The objective of the following study is to assess parent reported quality of life (QOL) in children with epilepsy and to assess the demographic and clinical factors, which influence the QOL in children with epilepsy.
We consecutively enrolled 40 children aged from 2 years to 14 years with active epilepsy who had undergone a comprehensive evaluation for epilepsy.
Parents were enquired on baseline demographic variables including age, gender, socio-economic status and parental education. Clinical details of epilepsy including the type of epilepsy, seizure frequency were assessed. QOL was evaluated with the parent reported quality of life in childhood epilepsy (QOLCE) questionnaire.
A total of 40 children were enrolled of which 55% (22/40) were males and the mean (standard deviation [SD]) age of enrolled children was 10.6 (2.7) years. The majority came from a rural background (80% [32/40]), were from lower (15 [37.5%]) or middle (23 [57.5%]) socio-economic status, with almost half (22 [55%]) of mothers being educated until high school. The overall mean (SD) QOL score was 66.7 (4.83). Lowest mean (SD) scores were observed in self-esteem (45.2 [7.3]) subscale and subscales with higher QOL scores included control/helplessness (82.1 [8.51]), anxiety (81.6 [12.55]) and social stigma (95.0 [11.6]). Parental education, socio-economic status (P = 0.96), frequency of seizure (P = 0.34) or type of epilepsy (P = 0.92) did not significantly affect the overall QOL among children with epilepsy.
Our study concluded that overall QOL was compromised in Indian children with epilepsy. Demographic factors like parental education, socio-economic status and clinical factors like frequency of seizure or type of seizure did not significantly affect the QOL of epileptic children.
以下研究的目的是评估家长报告的癫痫患儿生活质量（QOL），并评估影响癫痫患儿生活质量的人口统计学和临床因素。
我们连续招募了40名年龄在2岁至14岁之间的活动性癫痫患儿，这些患儿均接受了癫痫综合评估。
询问家长关于基线人口统计学变量，包括年龄、性别、社会经济状况和父母教育程度。评估癫痫的临床细节，包括癫痫类型、发作频率。使用家长报告的儿童癫痫生活质量（QOLCE）问卷评估生活质量。
共招募了40名儿童，其中55%（22/40）为男性，入选儿童的平均（标准差[SD]）年龄为10.6（2.7）岁。大多数儿童来自农村背景（80%[32/40]），社会经济地位较低（15[37.5%]）或中等（23[57.5%]），近一半（22[55%]）的母亲接受教育至高中。总体平均（SD）生活质量得分为66.7（4.83）。自尊（45.2[7.3]）子量表得分最低，生活质量得分较高的子量表包括控制/无助感（82.1[8.51]）、焦虑（81.6[12.55]）和社会耻辱感（95.0[11.6]）。父母教育程度、社会经济状况（P = 0.96）、发作频率（P = 0.34）或癫痫类型（P = 0.92）对癫痫患儿的总体生活质量没有显著影响。
我们的研究得出结论，印度癫痫患儿的总体生活质量受到损害。父母教育程度、社会经济状况等人口统计学因素以及发作频率或发作类型等临床因素对癫痫患儿的生活质量没有显著影响。
