Njeru Jane W, Patten Christi A, Hanza Marcelo M K, Brockman Tabetha A, Ridgeway Jennifer L, Weis Jennifer A, Clark Matthew M, Goodson Miriam, Osman Ahmed, Porraz-Capetillo Graciela, Hared Abdullah, Myers Allison, Sia Irene G, Wieland Mark L
Division of Primary Care Internal Medicine, Department of Medicine, Mayo Clinic, 200 First Street SW, Rochester, MN, 55905, USA.
Department of Psychiatry and Psychology, Mayo Clinic, Rochester, USA.
BMC Public Health. 2015 Dec 29;15:1311. doi: 10.1186/s12889-015-2628-y.
Immigrants and refugees are affected by diabetes-related health disparities, with higher rates of incident diabetes and sub-optimal diabetes outcomes. Digital storytelling interventions for chronic diseases, such as diabetes may be especially powerful among immigrants because often limited English proficiency minimizes access to and affects the applicability of the existing health education opportunities. Community-based participatory research (CBPR), whereby community members and academia partner in an equitable relationship through all phases of the research, is an intuitive approach to develop these interventions. The main objective of this study was to develop a diabetes digital storytelling intervention with and for immigrant and refugee populations.
We used a CBPR approach to develop a diabetes digital storytelling intervention with and for immigrant and refugee Somali and Latino communities. Building on an established CBPR partnership, we conducted focus groups among community members with type II diabetes for a dual purpose: 1) to inform the intervention as it related to four domains of diabetes self-management (medication management, glucose self-monitoring, physical activity, and nutrition); 2) to identify champion storytellers for the intervention development. Eight participants attended a facilitated workshop for the creation of the digital stories.
Each of the eight storytellers, from the Somali and Latino communities with diabetes (four from each group), created a powerful and compelling story about their struggles and accomplishments related to the four domains of diabetes self-management.
This report is on a systematic, participatory process for the successful development of a diabetes storytelling intervention for Somali and Latino adults. Processes and products from this work may inform the work of other CBPR partnerships.
移民和难民受到与糖尿病相关的健康差异影响，糖尿病发病率较高且糖尿病治疗效果欠佳。针对糖尿病等慢性病的数字故事干预措施在移民中可能特别有效，因为英语水平往往有限会减少他们获得现有健康教育机会的途径，并影响这些机会的适用性。基于社区的参与性研究（CBPR），即社区成员和学术界在研究的各个阶段以平等关系合作，是开发这些干预措施的直观方法。本研究的主要目的是为移民和难民群体开发一种糖尿病数字故事干预措施。
我们采用CBPR方法，为索马里和拉丁裔移民及难民社区开发并实施了一种糖尿病数字故事干预措施。基于已建立的CBPR伙伴关系，我们对患有II型糖尿病的社区成员进行了焦点小组访谈，目的有两个：1）为与糖尿病自我管理的四个领域（药物管理、血糖自我监测、体育活动和营养）相关的干预措施提供信息；2）确定干预措施开发的故事讲述者代表。八名参与者参加了一个促进数字故事创作的工作坊。
来自患有糖尿病的索马里和拉丁裔社区的八位故事讲述者（每组四人），每人都创作了一个关于他们在糖尿病自我管理四个领域的挣扎与成就的有力且引人入胜的故事。
本报告介绍了一个系统的、参与性的过程，该过程成功地为索马里和拉丁裔成年人开发了一种糖尿病故事干预措施。这项工作的过程和成果可能为其他CBPR伙伴关系的工作提供参考。
