Sagaser Katelynn G, Shahrukh Hashmi S, Carter Rebecca D, Lemons Jennifer, Mendez-Figueroa Hector, Nassef Salma, Peery Brent, Singletary Claire N
Genetic Counseling Program, University of Texas Graduate School of Biomedical Sciences, 6431 Fannin Street, MSB 3.142, Houston, TX, 77030, USA.
Department of Pediatrics, University of Texas Medical School at Houston, Houston, TX, USA.
J Genet Couns. 2016 Oct;25(5):923-35. doi: 10.1007/s10897-015-9920-y. Epub 2016 Jan 15.
Religion and spirituality (R/S) are important components of many individuals' lives, and spirituality is often employed by women coping with pregnancy complications. To characterize how prenatal genetic counselors might address spiritual issues with patients, 283 English and Spanish speaking women receiving prenatal genetic counseling in Houston, Texas were surveyed post-counseling using both the Brief RCope and questions regarding interest in spiritual exploration. Genetic counselors were concurrently surveyed to identify religious/spiritual language used within sessions and perceived importance of R/S. Genetic counselors were significantly more likely to identify R/S as important to a patient when patients used religious/spiritual language (p < 0.001). Conversely, when no religious/spiritual terms were present, the counselor felt uncertain about the importance of R/S 63 % of the time. However, 67 % of patients reported that they felt comfortable sharing their faith as it relates to their pregnancy, and 93 % reported using positive religious coping. Less than 25 % reported a desire for overt religious actions such as prayer or scripture exploration. Therefore, most patients' desires for spiritual exploration center in the decision making and coping processes that are in line with the genetic counseling scope of practice. Thus, counselors should feel empowered to incorporate spiritual exploration into their patient conversations.
宗教与灵性（R/S）是许多人生活中的重要组成部分，灵性常常被应对妊娠并发症的女性所采用。为了描述产前遗传咨询师可能如何与患者探讨灵性问题，对在得克萨斯州休斯敦接受产前遗传咨询的283名讲英语和西班牙语的女性在咨询后进行了调查，使用了简易应对方式问卷（Brief RCope）以及关于灵性探索兴趣的问题。同时对遗传咨询师进行了调查，以确定咨询过程中使用的宗教/灵性语言以及对宗教与灵性的感知重要性。当患者使用宗教/灵性语言时，遗传咨询师更有可能认为宗教与灵性对患者很重要（p<0.001）。相反，当没有宗教/灵性术语出现时，咨询师在63%的情况下对宗教与灵性的重要性感到不确定。然而，67%的患者报告说，他们对分享与怀孕相关的信仰感到自在，93%的患者报告使用积极的宗教应对方式。不到25%的患者表示希望采取公开的宗教行动，如祈祷或研读经文。因此，大多数患者对灵性探索的渴望集中在与遗传咨询实践范围相符的决策和应对过程中。因此，咨询师应感到有能力将灵性探索纳入与患者的交谈中。
