Beaudry Jonas-Sébastien
The University of British Columbia, Vancouver, British Columbia, Canada
J Med Philos. 2016 Apr;41(2):210-28. doi: 10.1093/jmp/jhv063. Epub 2016 Feb 18.
The strategy of developing an ontology or models of disability as a prior step to settling ethical issues regarding disabilities is highly problematic for two reasons. First, key definitional aspects of disability are normative and cannot helpfully be made value-neutral. Second, if we accept that the contested concept of disability is value-laden, it is far from obvious that there are definitive reasons for choosing one interpretation of the concept over another. I conclude that the concept of disability is better left ethically open-ended or broad enough to encompass the examination of various ethical issues (such as oppression, minority rights, or physical discomfort). Alternatively, the concept of disability could be altogether abandoned in order to focus on specific issues without being hindered by debates about the nature of disability. Only political costs, rather than conceptual considerations internal to the models, could be weighed against such a conclusion.
将残疾本体论或模型的构建作为解决残疾伦理问题的先行步骤,这种策略存在很大问题,原因有二。其一,残疾的关键定义层面具有规范性,无法有效地做到价值中立。其二,如果我们承认有争议的残疾概念是充满价值判断的,那么远非显而易见的是,存在明确的理由在对该概念的一种解释和另一种解释之间做出选择。我的结论是,残疾概念在伦理上最好保持开放式或足够宽泛,以涵盖对各种伦理问题(如压迫、少数群体权利或身体不适)的审视。或者,残疾概念可以完全被摒弃,以便专注于特定问题,而不受关于残疾本质的争论的阻碍。只有政治成本,而非模型内部的概念考量,才能与这一结论相权衡。