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残疾的生态-具身模型:为何残疾并不意味着病态体现。

The Ecological-Enactive Model of Disability: Why Disability Does Not Entail Pathological Embodiment.

作者信息

Toro Juan, Kiverstein Julian, Rietveld Erik

机构信息

Center for Subjectivity Research, Faculty of Humanities, University of Copenhagen, Copenhagen, Denmark.

The Enactlab, Copenhagen, Denmark.

出版信息

Front Psychol. 2020 Jun 11;11:1162. doi: 10.3389/fpsyg.2020.01162. eCollection 2020.

Abstract

In the last 50 years, discussions of how to understand disability have been dominated by the medical and social models. Paradoxically, both models overlook the disabled person's experience of the lived body, thus reducing the body of the disabled person to a physiological body. In this article we introduce what we call the Ecological-Enactive (EE) model of disability. The EE-model combines ideas from enactive cognitive science and ecological psychology with the aim of doing justice simultaneously to the lived experience of being disabled, and the physiological dimensions of disability. More specifically, we put the EE model to work to disentangle the concepts of disability and pathology. We locate the difference between pathological and normal forms of embodiment in the person's capacity to adapt to changes in the environment. To ensure that our discussion remains in contact with lived experience, we draw upon phenomenological interviews we have carried out with people with Cerebral Palsy.

摘要

在过去的50年里,关于如何理解残疾的讨论一直由医学模型和社会模型主导。矛盾的是,这两种模型都忽视了残疾人对身体的实际体验,从而将残疾人的身体简化为生理身体。在本文中,我们介绍了我们所称的残疾生态-具身(EE)模型。EE模型将具身认知科学和生态心理学的观点结合起来,旨在同时公正地对待残疾的实际体验和残疾的生理层面。更具体地说,我们运用EE模型来厘清残疾和病理学的概念。我们将病理形式和正常形式的体现之间的差异定位在个体适应环境变化的能力上。为确保我们的讨论与实际体验相关,我们借鉴了我们对脑瘫患者进行的现象学访谈。

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本文引用的文献

2
Beyond (Models of) Disability?超越(残疾模式)?
J Med Philos. 2016 Apr;41(2):210-28. doi: 10.1093/jmp/jhv063. Epub 2016 Feb 18.
4
How to develop a phenomenological model of disability.如何构建一个关于残疾的现象学模型。
Med Health Care Philos. 2015 Nov;18(4):553-65. doi: 10.1007/s11019-015-9625-x.
10
Patterns of life: intertwining identity and cognition.生活模式:身份与认知的交织
Brain Cogn. 1997 Jun;34(1):72-87. doi: 10.1006/brcg.1997.0907.

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