Psychological Sciences and Health Sciences Research Institute, University of California, Merced, United States.
Department of Developmental Psychology and EMGO Institute for Health and Care Research, VU University, Amsterdam, The Netherlands.
Clin Psychol Rev. 2016 Apr;45:131-43. doi: 10.1016/j.cpr.2015.11.007. Epub 2015 Nov 27.
The quality of children's life is important both as an investment in the future of our society and because children constitute an important group of themselves and deserve to experience well-being presently. Quality of life (QOL) has been conceptualized and studied in children for several decades, but with disparate approaches that have rarely been discussed jointly with application to children in general. Here we describe and critically examine the three main approaches to children's QOL: health-related QOL (HRQOL), social indicators, and subjective well-being (SWB). Although this is not a review of instruments per se, we illustrate these approaches by describing their most prominent measures. Issues and opportunities in research on children's QOL are then discussed related to conceptual clarity, content specification, range of experience, subjective and objective perspectives, development in childhood, reporting source, and malleability of QOL. Finally, directions for advancing children's QOL are considered. We highlight the benefits of focusing on social indicators and SWB, rather than HRQOL, when representing this concept for children in general, the need for applying more sophisticated research strategies, and using QOL as a universal indicator of success whenever we intend to advance the well-being of children through intervention, programs, and policy.
儿童生活质量既是对我们社会未来的一项投资,也很重要,因为儿童本身是一个重要的群体,他们应该在当下体验到幸福感。几十年来,人们一直在从概念上和研究角度来探讨儿童的生活质量(QOL),但采用的方法各不相同,而且很少有方法被共同用于一般儿童。在这里,我们描述并批判性地考察了儿童生活质量的三种主要方法:与健康相关的生活质量(HRQOL)、社会指标和主观幸福感(SWB)。虽然这不是专门针对工具的综述,但我们通过描述其最突出的措施来说明这些方法。然后,我们讨论了与概念清晰度、内容具体性、体验范围、主观和客观观点、儿童期发展、报告来源以及 QOL 的可塑造性相关的儿童生活质量研究中的问题和机遇。最后,我们考虑了推进儿童生活质量的方向。我们强调了在代表一般儿童的这一概念时,关注社会指标和 SWB 而不是 HRQOL 的好处,需要应用更复杂的研究策略,并在我们通过干预、项目和政策来提高儿童幸福感时,将 QOL 用作成功的普遍指标。