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[儿童健康领域的生活质量研究。现状与问题]

[QOL research in child health. Present state and issues].

作者信息

Matsuda Tomohiro, Noguchi Makiko, Umeno Yuko, Kato Noriko

机构信息

Cancer Information Services and Surveillance Division, Center for Cancer Control and Information Services, National Cancer Center.

出版信息

Nihon Koshu Eisei Zasshi. 2006 Nov;53(11):805-17.

Abstract

The evaluation of QOL (Quality of Life) in the medical field has revolved around the development of self-measurement scales comprising two or more questions based on psychometric theory. QOL research in the field of child health progressed in the latter half of the 80s in the United States, and aspects of ambiguity and adaptation to the environment of children were recognized. Objective health and subjective health differ significantly among children and are strongly influenced by environmental factors. In addition, QOL in early life anticipates the later health status in adolescence and youth. For these reasons, QOL research in the field of child health is very important. More than 20 scales, exemplified by CHQ, PedsQL, TACQOL/TAPQOL, and COOP charts, exist as standard generic QOL indices for children. Disease-specific scales cover epilepsy, asthma, and allergic disease, as discussed in a number of early studies. Diabetes, skin disease, and cancer are also major research subjects. Self-evaluation is one of the principles of QOL research; it is stated that children in the age group of 5-6 years are already capable of expressing pain and their physical condition and that the competency to describe abstract concepts such as pride and happiness matures around the age of 9-10 years. Sources of information such as the computer have developed and spread remarkably in recent years. The use of such technology facilitates the evaluation of young children with a high level of accuracy. The problems currently faced are the low reliability of responses of children, difficulties in cross-cultural comparison, and transformation of the sense of values according to growth. In conclusion, the development of QOL research in the field of child health should allow realization of an improved health situation in which children's points of view are included in the decision-making process for required treatments and health care policy. Further, health administration can be expected to thereby become more effective and balanced.

摘要

医学领域中生活质量(QOL)的评估一直围绕着基于心理测量理论开发的包含两个或更多问题的自我测量量表展开。美国儿童健康领域的生活质量研究在80年代后半期取得进展,儿童的模糊性和对环境的适应性等方面得到了认识。客观健康和主观健康在儿童中差异显著,并受到环境因素的强烈影响。此外,早期生活中的生活质量预示着青少年和青年时期的后期健康状况。出于这些原因,儿童健康领域的生活质量研究非常重要。以CHQ、PedsQL、TACQOL/TAPQOL和COOP图表为例,有20多种量表作为儿童的标准通用生活质量指标。疾病特异性量表涵盖癫痫、哮喘和过敏性疾病,许多早期研究都有讨论。糖尿病、皮肤病和癌症也是主要的研究对象。自我评估是生活质量研究的原则之一;据说5-6岁年龄段的儿童已经能够表达疼痛和身体状况,而描述诸如自豪和幸福等抽象概念的能力在9-10岁左右成熟。近年来,计算机等信息来源有了显著的发展和普及。使用此类技术有助于高精度地评估幼儿。目前面临的问题是儿童回答的可靠性低、跨文化比较困难以及价值观随成长而转变。总之,儿童健康领域生活质量研究的发展应能实现一种改善的健康状况,即在所需治疗和医疗保健政策的决策过程中纳入儿童的观点。此外,有望使卫生管理变得更加有效和平衡。

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