Department of Medical Psychology and Psychotherapy Medical Sociology and Rehabilitation Sciences, Julius-Maximillian University of Wurzburg, Würzburg, Germany.
Centre for Health, Activity, and Rehabilitation Research, School of Physiotherapy, University of Otago, Dunedin, New Zealand.
Disabil Rehabil. 2019 Nov;41(23):2792-2798. doi: 10.1080/09638288.2018.1478993. Epub 2018 Jun 17.
To explore the experiences and perspectives of the healthcare professionals who were trained to and delivered "Minimise Fatigue, Maximise Life" (MFML), a patient-centered group-based fatigue self-management program for persons with multiple sclerosis. A qualitative descriptive study with semi-structured individual interviews at two time points. Data were analyzed for themes. Six healthcare professional facilitators who were trained to and delivered "Minimise Fatigue, Maximise Life" participated in a first interview, and five in a second. Participants were all female, aged between 23 and 66 years old and either occupational therapists or physiotherapists. Two themes were evident in the data. The first, "Reciprocity," showed how the healthcare professionals were trained to deliver MFML, then reciprocated in the program delivery as active participants, which then provided feelings of personal reward and expansion of their usual practice. The second, "Enhancements," encompassed suggested directions for future training and deliveries of the program. This study suggests that multidimensional patient centered interventions also benefit the healthcare professionals who provide them because it expands their practice. Healthcare professionals who recognize the benefits of innovative and patient-centered interventions, supports both the patients with whom they work, and adds value to the health services they provide.Implications for rehabilitationHealthcare professionals who undergo training to facilitate delivery of self-management programs, which are based in an empowerment model, report an enhancement or expansion of their traditional practice.An empowerment-based program delivered in a group situation encourages and facilitates people to draw on their own and peers' knowledge and expertise to problem solve for self-management.Healthcare professional education should facilitate the healthcare professional's learning, and ability and willingness to acknowledge the richness in knowledge and expertise held by their patients.
探讨接受过“减轻疲劳，延长生命”（Minimise Fatigue, Maximise Life，MFML）培训并提供该服务的医疗保健专业人员的经验和观点，这是一种针对多发性硬化症患者的以患者为中心的基于小组的疲劳自我管理方案。这是一项采用半结构式个体访谈法在两个时间点进行的定性描述性研究。对数据进行主题分析。六位接受过“减轻疲劳，延长生命”培训并提供该服务的医疗保健专业人员参与了第一次访谈，其中五位参与了第二次访谈。参与者均为女性，年龄在 23 至 66 岁之间，职业治疗师或物理治疗师。数据中有两个主题很明显。第一个主题是“互惠”，表明医疗保健专业人员如何接受 MFML 的培训，然后作为积极参与者回馈方案的实施，这为他们带来了个人回报的感觉，并扩大了他们的常规实践。第二个主题是“增强”，涵盖了未来培训和实施该方案的建议方向。本研究表明，多维以患者为中心的干预措施也使提供这些干预措施的医疗保健专业人员受益，因为这扩大了他们的实践范围。认识到创新和以患者为中心的干预措施益处的医疗保健专业人员，不仅支持他们所服务的患者，还为他们提供的卫生服务增加了价值。
康复的意义
接受基于赋权模式的自我管理方案培训以促进方案实施的医疗保健专业人员报告说，他们的传统实践得到了增强或扩展。
在小组环境中实施的基于赋权的方案鼓励并促进人们利用自己和同行的知识和专业知识来解决自我管理问题。
医疗保健专业人员教育应促进医疗保健专业人员的学习能力以及承认患者丰富的知识和专业技能的意愿和能力。
