Sadler Euan, Sarre Sophie, Tinker Anthea, Bhalla Ajay, McKevitt Christopher
Division of Health & Social Care Research, Faculty of Life Sciences & Medicine, King's College London, London, UK.
National Institute for Health Research (NIHR), Collaboration for Leadership in Applied Health Research and Care South London, Stroke Theme, 5th Floor Addison House, Guy's, London, UK.
Health Soc Care Community. 2017 Sep;25(5):1590-1600. doi: 10.1111/hsc.12336. Epub 2016 Mar 4.
Stroke can lead to physical, mental and social long-term consequences, with the incidence of stroke increasing with age. However, there is a lack of evidence of how to improve long-term outcomes for people with stroke. Resilience, the ability to 'bounce back', flourish or thrive in the face of adversity improves mental health and quality of life in older adults. However, the role of resilience in adjustment after stroke has been little investigated. The purpose of this study is to report on the development and preliminary evaluation of a novel intervention to promote resilience after stroke. We applied the first two phases of the revised UK Medical Research Council (UKMRC) framework for the development and evaluation of complex interventions: intervention development (phase 1) and feasibility testing (phase 2). Methods involved reviewing existing evidence and theory, interviews with 22 older stroke survivors and 5 carers, and focus groups and interviews with 38 professionals to investigate their understandings of resilience and its role in adjustment after stroke. We used stakeholder consultation to co-design the intervention and returned to the literature to develop its theoretical foundations. We developed a 6-week group-based peer support intervention to promote resilience after stroke. Theoretical mechanisms of peer support targeted were social learning, meaning-making, helping others and social comparison. Preliminary evaluation with 11 older stroke survivors in a local community setting found that it was feasible to deliver the intervention, and acceptable to stroke survivors, peer facilitators, and professionals in stroke care and research. This study demonstrates the application of the revised UKMRC framework to systematically develop an empirically and theoretically robust intervention to promote resilience after stroke. A future randomised feasibility study is needed to determine whether a full trial is feasible with a larger sample and wider age range of people with stroke.
中风会导致身体、心理和社会层面的长期后果,且中风的发病率会随着年龄增长而上升。然而,目前缺乏关于如何改善中风患者长期预后的证据。复原力是指在面对逆境时“恢复过来”、蓬勃发展或茁壮成长的能力,它能改善老年人的心理健康和生活质量。然而,复原力在中风后适应过程中的作用鲜少得到研究。本研究的目的是报告一种促进中风后复原力的新型干预措施的开发及初步评估情况。我们应用了经修订的英国医学研究理事会(UKMRC)复杂干预措施开发与评估框架的前两个阶段:干预措施开发(第1阶段)和可行性测试(第2阶段)。方法包括查阅现有证据和理论、对22名老年中风幸存者和5名护理人员进行访谈,以及对38名专业人员进行焦点小组讨论和访谈,以调查他们对复原力及其在中风后适应过程中作用的理解。我们通过利益相关者咨询共同设计干预措施,并回归文献以发展其理论基础。我们开发了一种为期6周的基于小组的同伴支持干预措施,以促进中风后的复原力。同伴支持的理论机制目标包括社会学习、意义建构、帮助他人和社会比较。在当地社区环境中对11名老年中风幸存者进行的初步评估发现,实施该干预措施是可行的,并且中风幸存者、同伴促进者以及中风护理和研究领域的专业人员都能接受。本研究展示了经修订的UKMRC框架在系统开发一种经验和理论上都坚实可靠的促进中风后复原力干预措施中的应用。未来需要进行一项随机可行性研究,以确定对更大样本和更广泛年龄范围的中风患者进行全面试验是否可行。