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中风后的生活与支持性中风路径:快速现实主义综述方案

Life After Stroke and Supportive Stroke Pathways: Protocol For A Rapid Realist Review.

作者信息

Lennon Olive, O'Neill Mary, Walsh Killian, Horgan Frances

机构信息

University College Dublin, School of Public Health Physiotherapy, and Sports Science, Dublin, Leinster, Ireland.

School of Physiotherapy, Royal College of Surgeons in Ireland, Dublin, Leinster, Ireland.

出版信息

HRB Open Res. 2025 Mar 25;8:10. doi: 10.12688/hrbopenres.14034.2. eCollection 2025.

DOI:10.12688/hrbopenres.14034.2
PMID:40225809
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11986413/
Abstract

BACKGROUND

Ever-growing numbers of individuals are surviving stroke and living with the consequences. Life after stroke is a key pillar in addressing the burden of stroke for the remaining lifespan for those with stroke. No consensus on how to best promote agency and fulfilment in life after stroke or the resources required to achieve this currently exists.

METHODS

In this realist review protocol we outline the methods we will use to gain an understanding of supporting Life after Stroke through the development of programme theories. These will consist of context-mechanism-outcome configurations (CMOCs) and will acknowledge the resources required. The review will follow the RAMESES five-stage structured methodology to (1) define the scope of the review, and the development of initial programme theories for supporting life after stroke, (2) develop a comprehensive search strategy to identify relevant research, (3) review primary studies and extract data, (4) synthesise evidence (5) refine programme theories iteratively throughout the process using an Expert Panel and reference group, to including stroke researchers, health care professionals working in stroke care, people with lived experience of stroke and carers, and stroke support agencies.

CONCLUSION

This realist review aims to conceptualise supports for Life after Stroke. The CMOCs developed will help explain how generative causation within the life after stroke pathway works. The findings will help inform policy and practice and inform future realist evaluations of Life after Stroke support pathways.

摘要

背景

越来越多的人在中风后存活下来并承受着后遗症。中风后的生活是应对中风幸存者余生中风负担的关键支柱。目前对于如何最好地促进中风后生活中的自主性和成就感,或者实现这一目标所需的资源,尚未达成共识。

方法

在本现实主义综述方案中,我们概述了将用于通过制定项目理论来理解中风后生活支持的方法。这些理论将由背景 - 机制 - 结果构型(CMOCs)组成,并将考虑所需资源。该综述将遵循RAMESES五阶段结构化方法,以(1)确定综述范围,并制定支持中风后生活的初始项目理论;(2)制定全面的检索策略以识别相关研究;(3)审查原始研究并提取数据;(4)综合证据;(5)在整个过程中使用专家小组和参考小组反复完善项目理论,参考小组包括中风研究人员、从事中风护理的医疗保健专业人员、有中风亲身经历的人和护理人员以及中风支持机构。

结论

本现实主义综述旨在对中风后生活的支持进行概念化。所制定的CMOCs将有助于解释中风后生活路径中的生成性因果关系是如何起作用的。研究结果将有助于为政策和实践提供信息,并为未来对中风后生活支持路径的现实主义评估提供信息。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/95b1/12260488/67f177469b73/hrbopenres-8-15617-g0000.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/95b1/12260488/67f177469b73/hrbopenres-8-15617-g0000.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/95b1/12260488/67f177469b73/hrbopenres-8-15617-g0000.jpg

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本文引用的文献

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Transitioning to home and beyond following stroke: a prospective cohort study of outcomes and needs.脑卒中后居家及转归的前瞻性队列研究:结局与需求评估
BMC Health Serv Res. 2024 Apr 10;24(1):449. doi: 10.1186/s12913-024-10820-8.
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Priorities for developing stroke care in Ireland from the perspectives of stroke survivors, family carers and professionals involved in stroke care: A mixed methods study.
从中风幸存者、家庭照顾者和参与中风护理的专业人员的角度出发,爱尔兰中风护理的发展重点:一项混合方法研究。
PLoS One. 2024 Jan 19;19(1):e0297072. doi: 10.1371/journal.pone.0297072. eCollection 2024.
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A rapid realist review of clinical neuropsychology rehabilitation programmes to improve psychological wellbeing and quality of life for people with acquired brain injuries.针对改善后天性脑损伤患者心理幸福感和生活质量的临床神经心理学康复方案的快速现实主义综述。
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Influence of the Therapeutic Alliance on the Rehabilitation of Stroke: A Systematic Review of Qualitative Studies.治疗联盟对中风康复的影响:定性研究的系统评价
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How do stroke early supported discharge services achieve intensive and responsive service provision? Findings from a realist evaluation study (WISE).卒中早期支持出院服务如何实现强化和响应式服务提供?一项实际评估研究(WISE)的结果。
BMC Health Serv Res. 2023 Mar 28;23(1):299. doi: 10.1186/s12913-023-09290-1.
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Applying and reporting relevance, richness and rigour in realist evidence appraisals: Advancing key concepts in realist reviews.在真实主义评价中应用和报告相关性、丰富性和严谨性:推进真实主义综述的关键概念。
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Co-creating Digital Stories With UK-Based Stroke Survivors With the Aim of Synthesizing Collective Lessons From Individual Experiences of Interacting With Healthcare Professionals.与英国中风幸存者共同创作数字故事,旨在从与医疗专业人员互动的个人经历中总结集体经验教训。
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