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土耳其家庭照顾精神分裂症患者的体验:一项定性研究。

The experiences of Turkish families caring for individuals with Schizophrenia: A qualitative inquiry.

机构信息

1 Department of Social Work, Faculty of Health Sciences, Baskent University, Ankara, Turkey.

2 Department of Social Work, Hacettepe University, Ankara, Turkey.

出版信息

Int J Soc Psychiatry. 2018 Aug;64(5):497-505. doi: 10.1177/0020764018779090. Epub 2018 Jun 3.

Abstract

BACKGROUND

In Turkey, individuals with schizophrenia usually live with their families. Therefore, families are main caregivers and face psychological, financial and social problems.

AIM

The aim of this study is to understand the personal burdens and coping strategies, and social support affecting the families that provide care to the individuals with schizophrenia.

METHODS

In-depth interviews were conducted with 31 members of 12 families.

RESULTS

Four themes were formed: learning and accepting the disorder, caregiving, social dimensions and service dimensions. Families have a problem with accepting this order and caregiving affects their quality of life both financially and socially. As schizophrenia is one of the reasons for being isolated from community, families prefer hiding it. Although families are satisfied with community-based systems, they need long-term solution, training and financial aid.

CONCLUSIONS

To reduce the burden, family therapies, education and psychological support should be provided for families, and job opportunities, long-term caregiving services and psychological support should be provided for individuals with schizophrenia.

摘要

背景

在土耳其,精神分裂症患者通常与家人一起生活。因此,家庭是主要的照顾者,面临着心理、经济和社会问题。

目的

本研究旨在了解影响照顾精神分裂症患者家庭的个人负担、应对策略和社会支持。

方法

对 12 个家庭的 31 名成员进行了深入访谈。

结果

形成了四个主题:了解和接受疾病、照顾、社会层面和服务层面。家庭在接受这种秩序方面存在问题,照顾会对他们的生活质量产生经济和社会方面的影响。由于精神分裂症是导致与社区隔离的原因之一,家庭更倾向于隐瞒它。尽管家庭对基于社区的系统感到满意,但他们需要长期的解决方案、培训和经济援助。

结论

为了减轻负担,应向家庭提供家庭治疗、教育和心理支持,同时为精神分裂症患者提供工作机会、长期护理服务和心理支持。

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