Sanz-Baños Yolanda, Pastor María-Ángeles, Velasco Lilian, López-Roig Sofía, Peñacoba Cecilia, Lledo Ana, Rodríguez Charo
Department of Health Psychology, Miguel Hernández University, Ctra. Alicante-Valencia, km. 8.7, 03550, Alicante, Spain.
Department of Medicine and Surgery, Psychology, Preventive Medicine and Public Health and Medical Microbiology and Immunology, Faculty of Health Sciences, King Juan Carlos University, Av Atenas, S/N, 28922, Alcorcón, Madrid, Spain.
Rheumatol Int. 2016 Aug;36(8):1135-43. doi: 10.1007/s00296-016-3459-6. Epub 2016 Mar 15.
Walking improves health outcomes in fibromyalgia; however, there is low adherence to this practice. The aim of this research was to explore the beliefs of women suffering from fibromyalgia toward walking, and the meaning that they attribute to the behavior of walking as part of their fibromyalgia treatment. This study is a qualitative description research. Forty-six (46) women suffering from fibromyalgia and associated with local fibromyalgia associations located in four different Spanish cities (Elche, Alicante, Madrid, and Talavera de la Reina) participated in focus group discussions in the summer 2012. Thematic content analysis was performed in transcribed verbatim from interviews. Participants perceived several inhibitors for walking even when they had positive beliefs toward its therapeutic value. Whereas participants believed that walking can generate improvement in their disease and their health in general, they did not feel able to actually do so given their many physical impediments. Furthermore, participants struggled with social isolation and stigma, which was lessened through the conscious support of family. Advice from family doctors was also a very important facilitator to participants. In a health care delivery context that favors person-centered care, and in order to foster adherence to walking-based fibromyalgia treatments, it is recommended that therapeutic walking programs be tailored to each woman' individual circumstances, and developed in close collaboration with them to help them increase control over their health and their condition.
步行能改善纤维肌痛患者的健康状况；然而，这种做法的依从性较低。本研究的目的是探究纤维肌痛女性对步行的看法，以及她们将步行行为视为纤维肌痛治疗一部分所赋予的意义。本研究是一项定性描述性研究。2012年夏天，来自西班牙四个不同城市（埃尔切、阿利坎特、马德里和塔拉韦拉德拉雷纳）的46名患有纤维肌痛并加入当地纤维肌痛协会的女性参加了焦点小组讨论。对访谈逐字记录进行了主题内容分析。即使参与者对步行的治疗价值持积极看法，但她们仍察觉到步行存在多种阻碍因素。尽管参与者认为步行总体上能改善她们的疾病和健康状况，但鉴于自身诸多身体障碍，她们觉得实际无法做到。此外，参与者还面临社会孤立和污名化问题，而家人的有意识支持减轻了这些问题。家庭医生的建议对参与者来说也是一个非常重要的促进因素。在以患者为中心的医疗服务背景下，为了促进对基于步行的纤维肌痛治疗的依从性，建议根据每位女性的具体情况量身定制治疗性步行计划，并与她们密切合作制定计划，以帮助她们增强对自身健康和病情的掌控。
