Gibbon Sahra
Anthropology Department, University College London, London, UK,
Hist Cienc Saude Manguinhos. 2016 Jan-Mar;23(1):95-112. doi: 10.1590/S0104-59702016000100007.
This article examines how cancer genetics has emerged as a focus for research and healthcare in Cuba and Brazil. Drawing on ethnographic research undertaken in community genetics clinics and cancer genetics services, the article examines how the knowledge and technologies associated with this novel area of healthcare are translated and put to work by researchers, health professionals, patients and their families in these two contexts. It illuminates the comparative similarities and differences in how cancer genetics is emerging in relation to transnational research priorities, the history and contemporary politics of public health and embodied vulnerability to cancer that reconfigures the scope and meaning of genomics as "personalised" medicine.
本文探讨了癌症遗传学如何在古巴和巴西成为研究及医疗保健的重点。基于在社区遗传学诊所和癌症遗传学服务机构进行的人种志研究,本文考察了与这一新型医疗领域相关的知识和技术是如何在这两种背景下被研究人员、医疗专业人员、患者及其家属进行转化并应用的。它阐明了在跨国研究重点、公共卫生的历史与当代政治以及癌症所带来的身体脆弱性方面,癌症遗传学在出现过程中的比较异同,而这些因素重新塑造了作为“个性化”医学的基因组学的范围和意义。