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直面时代:一个早发性痴呆症支持小组:脸书™风格。

Facing the times: A young onset dementia support group: Facebook™ style.

作者信息

Craig Denise, Strivens Edward

机构信息

FNQ ACAT and Memory Service, Cairns and Hinterland Hospital and Health Service, Cairns, Queensland, Australia.

Older Persons and Subacute Services, Cairns and Hinterland Hospital and Health Service, Cairns.

出版信息

Australas J Ageing. 2016 Mar;35(1):48-53. doi: 10.1111/ajag.12264.

DOI:10.1111/ajag.12264
PMID:27010874
Abstract

Young onset dementia accounts for up to 1 in 10 dementia diagnoses. Those diagnosed face premature transition into the realm of aged care services and adjustment to an illness of ageing prior to age 65. To help elicit communication of the perceived psychosocial needs of this group, provide a platform to gain peer support and advocate for increased awareness, the Young Onset Dementia Support Group was established on the social networking site, Facebook™ . Followers post comments, read educational or otherwise interesting news feeds, share inspirational quotes and access others living with dementia worldwide. Facebook provides a means of rapid global reach in a way that allows people with dementia to increase their communications and potentially reduce isolation. This paper was authored by the page administrators. We aim to highlight the promising utility of a social network platform just entering its stride amongst health communication initiatives.

摘要

早发性痴呆症占痴呆症诊断病例的十分之一。那些被诊断出患有此病的人在65岁之前就过早地进入了老年护理服务领域,并要适应一种老年疾病。为了帮助引出该群体所感知到的心理社会需求的交流,提供一个获得同伴支持的平台,并倡导提高人们的认识,早发性痴呆症支持小组在社交网站Facebook™上成立。追随者们发表评论、阅读教育性或其他有趣的新闻推送、分享励志名言,并与世界各地的其他痴呆症患者交流。Facebook提供了一种快速覆盖全球的方式,使痴呆症患者能够增加交流,并有可能减少孤独感。本文由该页面管理员撰写。我们旨在强调一个刚刚在健康交流倡议中崭露头角的社交网络平台的潜在效用。

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