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本文引用的文献

1
Optimising Online Peer Support for People with Young Onset Dementia.优化针对早发性痴呆患者的在线同伴支持。
Int J Environ Res Public Health. 2024 Jan 2;21(1):60. doi: 10.3390/ijerph21010060.
2
Online peer support: views and experiences of people with young onset dementia (YOD).在线同伴支持:早发性痴呆症患者的观点与经历
Aging Ment Health. 2023 Nov-Dec;27(12):2386-2394. doi: 10.1080/13607863.2023.2205833. Epub 2023 May 10.
3
Experiences of people with dementia and informal caregivers with post-diagnostic support: Data from the international COGNISANCE study.痴呆症患者和非正式照护者的诊断后支持体验:来自国际 COGNISANCE 研究的数据。
Int J Geriatr Psychiatry. 2023 May;38(5):e5916. doi: 10.1002/gps.5916.
4
'I found it the only place that spoke the same language': a thematic analysis of messages posted to an online peer support discussion forum for people living with dementia.“我发现这里是唯一能让我找到共鸣的地方”:对一个面向痴呆症患者的在线同伴支持讨论论坛上所发布信息的主题分析
Age Ageing. 2023 Jan 8;52(1). doi: 10.1093/ageing/afac330.
5
Information on advance care planning on websites of dementia associations in Europe: A content analysis.欧洲痴呆症协会网站上的预先护理计划信息:一项内容分析。
Aging Ment Health. 2023 Sep-Oct;27(9):1821-1831. doi: 10.1080/13607863.2022.2146051. Epub 2022 Nov 24.
6
Peer support through video meetings: Experiences of people with young onset dementia.通过视频会议进行同伴支持:早发性痴呆患者的体验。
Dementia (London). 2023 Jan;22(1):218-234. doi: 10.1177/14713012221140468. Epub 2022 Nov 18.
7
Blogging through dementia: Reworking mainstream discourse through metaphor in online early-onset dementia narratives.通过痴呆症进行博客写作:通过在线早发性痴呆症叙事中的隐喻来重新构建主流话语。
Dementia (London). 2023 Jan;22(1):105-124. doi: 10.1177/14713012221136659. Epub 2022 Nov 2.
8
Blogging with dementia: Writing about lived experience of dementia in the public domain.博客与痴呆症:在公共领域书写痴呆症的生活体验。
Dementia (London). 2022 Nov;21(8):2402-2417. doi: 10.1177/14713012221112384. Epub 2022 Jul 8.
9
Investigating the Challenges and Benefits of Engaging in Peer Support via Videoconferencing for People with Spinal Cord Injury.调查通过视频会议进行同伴支持对脊髓损伤患者的挑战和益处。
Int J Environ Res Public Health. 2022 Apr 11;19(8):4585. doi: 10.3390/ijerph19084585.
10
An Update of Peer Support/Peer Provided Services Underlying Processes, Benefits, and Critical Ingredients.同伴支持/同伴提供服务的更新:潜在过程、益处和关键要素。
Psychiatr Q. 2022 Jun;93(2):571-586. doi: 10.1007/s11126-022-09971-w. Epub 2022 Feb 18.

针对痴呆症患者的在线同伴支持:一项范围综述方案。

Online peer support for people with dementia: a scoping review protocol.

作者信息

Loseto-Gerritzen Esther Vera, Talbot Catherine, McDermott Orii, Orrell Martin, Coulson Neil S

机构信息

Institute of Mental Health, Mental Health and Clinical Neurosciences, School of Medicine, University of Nottingham, Nottingham, United Kingdom.

Department of Psychology, Bournemouth University, Poole, United Kingdom.

出版信息

JBI Evid Synth. 2025 Jul 1;23(7):1426-1433. doi: 10.11124/JBIES-24-00343. Epub 2025 Jul 7.

DOI:10.11124/JBIES-24-00343
PMID:40104871
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12233168/
Abstract

OBJECTIVE

The objective of this scoping review is to gain insights into the different online peer support opportunities available for people with dementia.

INTRODUCTION

People with dementia use a variety of online platforms for peer support, such as social networking sites or videoconferencing platforms. Online peer support can offer a variety of benefits, such as overcoming geographical barriers and the opportunity to choose a platform and mode of communication that suits a person's needs and preferences. However, there is currently no synthesis of the different online peer support opportunities available to people with dementia.

ELIGIBILITY CRITERIA

Participants in this review will include people living with a self-reported diagnosis of any form of dementia. The concept is peer support through online platforms, while the context is online peer support that is accessible in English.

METHODS

The review will be conducted according to the JBI methodology for scoping reviews. A 3-step strategy will be used to search 4 data sources: scholarly and gray literature databases, Google search engine, social media and websites of dementia organizations, and consultations with people with dementia and professionals. The study selection and data extraction will be conducted by 2 reviewers independently, and a third reviewer will be consulted if needed. For the data extraction, a draft data extraction instrument will be used, following the recommendations of JBI. Data will be extracted on platform, online peer support, and study characteristics. The findings will be presented in tables and a narrative summary.

REVIEW REGISTRATION

OSF https://osf.io/8jtqc.

摘要

目的

本综述的目的是深入了解可供痴呆症患者使用的不同在线同伴支持机会。

引言

痴呆症患者使用各种在线平台获得同伴支持,如社交网站或视频会议平台。在线同伴支持可以带来多种益处,如克服地理障碍,以及有机会选择适合个人需求和偏好的平台及沟通方式。然而,目前尚无对痴呆症患者可获得的不同在线同伴支持机会的综合研究。

纳入标准

本综述的参与者将包括自我报告诊断患有任何形式痴呆症的人。概念是通过在线平台提供同伴支持,背景是可通过英语获得的在线同伴支持。

方法

本综述将根据JBI循证综述方法进行。将采用三步策略搜索4个数据源:学术和灰色文献数据库、谷歌搜索引擎、痴呆症组织的社交媒体和网站,以及与痴呆症患者和专业人员的咨询。研究选择和数据提取将由两名评审员独立进行,如有需要将咨询第三名评审员。对于数据提取,将根据JBI的建议使用数据提取工具草案。将提取有关平台、在线同伴支持和研究特征的数据。研究结果将以表格和叙述性总结的形式呈现。

综述注册

OSF https://osf.io/8jtqc。