Ramchandani Neesha, Maguire Laura L, Stern Kailyn, Quintos Jose B, Lee Mary, Sullivan-Bolyai Susan
New York University College of Nursing, NY, NY, USA.
University of Massachusetts Worcester, Worcester, MA, USA.
Patient Educ Couns. 2016 Aug;99(8):1362-7. doi: 10.1016/j.pec.2016.03.019. Epub 2016 Mar 19.
Parents who have a child newly diagnosed with type 1 diabetes (T1D) must quickly learn daily diabetes self-management. An RCT was conducted using human patient simulation (HPS) to enhance parents learning diabetes self-management with children with new-onset T1D. The purpose of this study was to describe parents' perspectives of using HPS to augment diabetes education.
A qualitative descriptive design was used with open-ended in-depth interviews of parents (n=49) post-intervention. Qualitative directed content analysis was used.
The majority of parents were positive about learning with HPS. Although a few parents said the HPS was "hokey" or "creepy," most reported the visual and hands-on learning was realistic and very beneficial. Seeing a seizure increased their fear although they would have panicked if they had not had that learning experience, and it helped build their diabetes self-management confidence. Recommendations included teaching others with the HPS (grandparents, siblings, babysitters, and school nurses).
HPS-enhanced education is an acceptable and viable option that was generally well-received by parents of children with new-onset T1D.
The technique should be studied with parents of children with other chronic illnesses to see if the benefits found in this study are applicable to other settings.
孩子新被诊断为1型糖尿病（T1D）的家长必须迅速学会日常糖尿病自我管理。开展了一项随机对照试验，使用人体患者模拟（HPS）来增强家长对新发病T1D患儿糖尿病自我管理的学习。本研究的目的是描述家长对使用HPS加强糖尿病教育的看法。
采用定性描述性设计，在干预后对家长（n = 49）进行开放式深入访谈。采用定性定向内容分析法。
大多数家长对通过HPS学习持积极态度。虽然有几位家长表示HPS“做作”或“令人毛骨悚然”，但大多数家长报告称，视觉和实践学习真实且非常有益。看到癫痫发作增加了他们的恐惧，不过如果没有这种学习经历他们会惊慌失措，而且这有助于建立他们糖尿病自我管理的信心。建议包括用HPS教导其他人（祖父母、兄弟姐妹、保姆和学校护士）。
HPS强化教育是一种可接受且可行的选择，新发病T1D患儿的家长普遍对此接受良好。
应与患有其他慢性病患儿的家长一起研究该技术，以确定本研究中发现的益处是否适用于其他情况。
