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土耳其癌症患者家庭照顾者生活质量和 FAMCARE 量表的心理计量学验证研究。

A psychometric validation study of the Quality of Life and FAMCARE scales in Turkish cancer family caregivers.

机构信息

Florence Nightingale School of Nursing, Istanbul University, Istanbul, Turkey.

出版信息

Qual Life Res. 2011 Oct;20(8):1319-29. doi: 10.1007/s11136-011-9867-x. Epub 2011 Feb 23.

DOI:10.1007/s11136-011-9867-x
PMID:21347572
Abstract

PURPOSE

The aim of this study was to assess the psychometric validation of the Quality of Life and FAMCARE scales in Turkish family caregivers of cancer patients.

METHODS

This is a descriptive study involving 100 family caregivers of cancer patients. The validity and reliability study of the scales was performed in two phases. Phase I focused on the construction of the Turkish version of the instruments and pilot testing. Phase II was the psychometric assessment of the scales.

RESULTS

The caregivers stated that the two questionnaires were easy to read and to understand. However, the psychometric validation performed afterwards revealed that both the ordering of the factor loadings and content of the scales were influenced by prevailing characteristics of Turkish society. Caregivers were satisfied with the care their patients received, and family concerns were the most negatively affected quality-of-life (QOL) dimensions. Factors affecting the QOL and satisfaction with care were age, co-residence, relationship to patient, gender of the patients and caregivers, stage of the disease of the patient and marital status of the caregivers.

CONCLUSION

Psychometric validation of the Quality of Life and FAMCARE scales demonstrates that these culturally adapted scales are valid and reliable tools to assess the QOL and satisfaction of Turkish family caregivers of cancer patients.

摘要

目的

本研究旨在评估生活质量和 FAMCARE 量表在土耳其癌症患者家庭照顾者中的心理测量学验证。

方法

这是一项涉及 100 名癌症患者家庭照顾者的描述性研究。量表的有效性和可靠性研究分为两个阶段进行。第一阶段侧重于仪器的土耳其语版本的构建和试点测试。第二阶段是对量表的心理测量评估。

结果

照顾者表示,这两个问卷易于阅读和理解。然而,随后进行的心理测量验证表明,因子负荷的排序和量表的内容都受到土耳其社会普遍特征的影响。照顾者对患者接受的护理感到满意,家庭关注是受影响最大的负面生活质量(QOL)维度。影响 QOL 和护理满意度的因素包括年龄、共同居住、与患者的关系、患者和照顾者的性别、患者疾病的阶段以及照顾者的婚姻状况。

结论

生活质量和 FAMCARE 量表的心理测量学验证表明,这些经过文化适应的量表是评估土耳其癌症患者家庭照顾者生活质量和满意度的有效可靠工具。

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