Young Christian, Tong Allison, Sherriff Simone, Kalucy Deanna, Fernando Peter, Muthayya Sumithra, Craig Jonathan C
Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.
The Sax Institute, Sydney, New South Wales, Australia Poche Centre for Indigenous Health, Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
BMJ Open. 2016 Apr 25;6(4):e010792. doi: 10.1136/bmjopen-2015-010792.
To describe the attitudes and beliefs of health professionals working in Aboriginal Community Controlled Health Services (ACCHS) towards the access, usage and potential value of routinely obtained clinical and research data.
DESIGN, SETTING AND PARTICIPANTS: Face-to-face, semistructured interviews were conducted with 35 health professionals from 2 urban and 1 regional ACCHS in New South Wales. The interviews were transcribed and themes were identified using an adapted grounded theory approach.
Six major themes were identified: occupational engagement (day-to-day relevance, contingent on professional capacity, emphasising clinical relevance), trust and assurance (protecting ownership, confidence in narratives, valuing local sources), motivation and empowerment (engaging the community, influencing morale, reassuring and encouraging clients), building research capacity (using cultural knowledge, promoting research aptitude, prioritising specific data), optimising service provision (necessity for sustainable services, guiding and improving services, supporting best practice), and enhancing usability (ensuring ease of comprehension, improving efficiency of data management, valuing accuracy and accessibility).
Participants were willing to learn data handling procedures that could further enhance health service delivery and enable more ACCHS-led research, but busy workloads restrict these opportunities. Staff held concerns regarding the translation of research data into beneficial services, and believed that the outcome and purpose of data collection could be communicated more clearly. Promoting research partnerships, ensuring greater awareness of positive health data and the purposes of data collection, and communicating data in a user-friendly format are likely to encourage greater data use, build research capacity and improve health services within the Aboriginal community.
描述在原住民社区控制卫生服务机构（ACCHS）工作的卫生专业人员对常规获取的临床和研究数据的获取、使用及潜在价值的态度和信念。
设计、地点和参与者：对新南威尔士州2家城市和1家地区性ACCHS的35名卫生专业人员进行了面对面的半结构化访谈。访谈内容被转录，并采用一种改编的扎根理论方法确定主题。
确定了六个主要主题：职业参与（日常相关性、取决于专业能力、强调临床相关性）、信任与保障（保护所有权、对叙述有信心、重视本地来源）、动机与赋权（让社区参与、影响士气、安抚和鼓励客户）、建设研究能力（利用文化知识、提升研究能力、优先考虑特定数据）、优化服务提供（可持续服务的必要性、指导和改进服务、支持最佳实践）以及提高可用性（确保易于理解、提高数据管理效率、重视准确性和可获取性）。
参与者愿意学习能够进一步改善卫生服务提供并促成更多由ACCHS主导的研究的数据处理程序，但繁重的工作量限制了这些机会。工作人员对将研究数据转化为有益服务存在担忧，并认为数据收集的结果和目的可以更清晰地传达。促进研究伙伴关系、确保对积极的健康数据及其收集目的有更高的认识，并以用户友好的格式传达数据，可能会鼓励更多地使用数据、建设研究能力并改善原住民社区内的卫生服务。
