McCall Claire, Mannion Michelle, Hilliard Carol, Lannon Pamela, McKenna Fiona, O'Marcaigh Aengus, Slevin Teresa, Smith Owen, Storey Lorna
1 Our Lady's Children's Hospital Crumlin, Dublin, Ireland.
J Pediatr Oncol Nurs. 2017 Mar/Apr;34(2):122-129. doi: 10.1177/1043454216646533. Epub 2016 Jul 7.
Caring for a child with cancer can disrupt family life and financial stability, in addition to affecting the child's social, emotional, and educational development. Health care providers must consider ways to minimize the negative impact of illness and hospitalization on the child and family. This study evaluates a nationwide initiative to educate and support parents to administer chemotherapy to their child in their home.
A questionnaire was circulated to parents participating in a home chemotherapy program from 2009 to 2014 (n = 140), seeking their perspective on the education program, and the benefits and concerns associated with administering home chemotherapy. Data analysis was conducted using a combination of descriptive statistics and content analysis.
Questionnaires were received from 108 parents (response rate = 77%). Overall, the program was positively evaluated with 100% of parents (n = 108) reporting that the training met their needs. More than one-third of parents (41%, n = 44) initially felt nervous about home chemotherapy but reported that the education program helped assuage their concerns. Benefits included reduced financial costs, reduced travel time to hospital, less disruption to family life, and less stress for the child and family. No medication errors were reported during the evaluation period.
An important feature of the program is the partnership approach, which ensures that parents' decision to enter the program is informed, appropriate for their situation, and centered on the needs of the child.
照顾患癌儿童不仅会影响孩子的社交、情感和教育发展，还会扰乱家庭生活和经济稳定。医疗保健提供者必须考虑如何将疾病和住院对孩子及其家庭的负面影响降至最低。本研究评估了一项全国性倡议，该倡议旨在教育和支持家长在家中为孩子进行化疗。
向2009年至2014年参与家庭化疗项目的家长发放了一份问卷（n = 140），征求他们对教育项目以及与在家中进行化疗相关的益处和担忧的看法。使用描述性统计和内容分析相结合的方法进行数据分析。
共收到108位家长的问卷（回复率 = 77%）。总体而言，该项目得到了积极评价，100%的家长（n = 108）表示培训满足了他们的需求。超过三分之一的家长（41%，n = 44）最初对在家中进行化疗感到紧张，但表示教育项目有助于缓解他们的担忧。益处包括降低财务成本、减少前往医院的时间、减少对家庭生活的干扰以及减轻孩子和家庭的压力。在评估期间未报告用药错误。
该项目的一个重要特点是采用了合作方式，这确保了家长参与该项目的决定是明智的、适合其情况的，并且以孩子的需求为中心。
