Mlinar Simona, Petek Davorina, Cotič Živa, Mencin Čeplak Metka, Zaletel Marjan
Faculty of Medicine, University of Ljubljana, Vrazov Trg 2, SI-1104 Ljubljana, Slovenia.
Faculty of Medicine, Department of Family Medicine, University of Ljubljana, Poljanski Nasip 58, SI-1000 Ljubljana, Slovenia.
Behav Neurol. 2016;2016:2018509. doi: 10.1155/2016/2018509. Epub 2016 Apr 26.
Epilepsy is a chronic neurological disorder that can lead to complex psychosocial consequences. Epilepsy can change the social status of persons with epilepsy (PWE) and has an effect on their social inclusion as well as their perception of social inclusion. This study aims to explore subjective experiences with social inclusion of PWE in Slovenia.
This study takes a qualitative approach. Eleven semistructured interviews were conducted with eleven participants. Interviews were analysed using thematic analysis.
Epilepsy has physical, emotional, and social consequences. Physical consequences of epilepsy are mainly tiredness and exhaustion following an epileptic episode, frequently accompanied by headaches. Emotional consequences are different forms of fear. The main social consequence identified is a negative effect on PWE's social network, which leads to (self-)isolation and social distrust.
PWE experience of social inclusion depends on various psychosocial factors and differs from person to person. The consequences of epilepsy are shown in PWE social contacts and their sense of social inclusion and autonomy.
癫痫是一种慢性神经疾病，可导致复杂的心理社会后果。癫痫会改变癫痫患者（PWE）的社会地位，并对他们的社会融入以及他们对社会融入的认知产生影响。本研究旨在探索斯洛文尼亚癫痫患者在社会融入方面的主观体验。
本研究采用定性研究方法。对11名参与者进行了11次半结构化访谈。采用主题分析法对访谈进行分析。
癫痫具有身体、情感和社会方面的后果。癫痫的身体后果主要是癫痫发作后的疲劳和疲惫，常伴有头痛。情感后果是不同形式的恐惧。确定的主要社会后果是对癫痫患者社交网络的负面影响，这导致（自我）孤立和社会不信任。
癫痫患者的社会融入体验取决于各种心理社会因素，因人而异。癫痫的后果体现在癫痫患者的社会交往以及他们的社会融入感和自主感上。
