Kimiafar Khalil, Sarbaz Masoumeh, Shahid Sales Soudabeh, Esmaeili Mojtaba, Javame Ghazvini Zohre
Department of Medical Records and Health Information Technology, School of Paramedical Sciences, Mashhad University of Medical Sciences, Mashhad, Iran.
Cancer Research Center, Mashhad University of Medical Sciences, Mashhad, Iran.
Breast. 2016 Aug;28:156-60. doi: 10.1016/j.breast.2016.05.011. Epub 2016 Jun 16.
Breast cancer is the most common cancer in women both around the world and in Iran. By studying the information needs of patients with breast cancer, the quality of the information provided for them can be improved. This study investigated the information needs of breast cancer patients and their information-seeking behavior.
This cross-sectional study was conducted from March to June, 2015. The research population was 120 women diagnosed with breast cancer and informed about their disease who referred to oncology outpatient clinics at a specialized cancer hospital and a radiotherapy oncology center in Mashhad (the only specialized cancer centers in eastern and northeastern Iran).
Average participant age was 46.2 years (SD = 9.9). Eighty-five percent of patients desired more information about their disease. Results showed that the attending physician (mean = 3.76), television health channel (mean = 3.30), and other patients (mean = 3.06) were the most popular sources of information for breast cancer patients. Patients stated their strongest reasons for using information sources as achieving a better understanding of the disease (mean = 3.59), less anxiety (mean = 3.92), and curiosity to learn more about the disease (mean = 3.66), sequentially. Results further indicated that disease management (mean = 4.18) and nutritional options during treatment (mean = 4.14) were the most often mentioned areas in which patients required information, while knowing the progress rate of their disease was the least (mean = 3.73).
It seems necessary to have a good, organized plan to provide breast cancer patients with information and increase their information literacy, one of their undeniable rights.
乳腺癌是全球及伊朗女性中最常见的癌症。通过研究乳腺癌患者的信息需求,可以提高为他们提供的信息质量。本研究调查了乳腺癌患者的信息需求及其信息寻求行为。
本横断面研究于2015年3月至6月进行。研究人群为120名被诊断患有乳腺癌并被告知病情的女性,她们前往马什哈德一家专门的癌症医院和一家放射肿瘤中心的肿瘤门诊就诊(马什哈德是伊朗东部和东北部唯一的专门癌症中心)。
参与者的平均年龄为46.2岁(标准差=9.9)。85%的患者希望获得更多有关其疾病的信息。结果显示,主治医生(平均=3.76)、电视健康频道(平均=3.30)和其他患者(平均=3.06)是乳腺癌患者最受欢迎的信息来源。患者表示使用信息来源的最主要原因依次是更好地了解疾病(平均=3.59)、减少焦虑(平均=3.92)以及对了解更多疾病知识的好奇心(平均=3.66)。结果还进一步表明,疾病管理(平均=4.18)和治疗期间的营养选择(平均=4.14)是患者最常提及需要信息的领域,而了解疾病的进展速度最少被提及(平均=3.73)。
似乎有必要制定一个良好、有组织的计划,为乳腺癌患者提供信息并提高他们的信息素养,这是他们不可否认的权利之一。