Merolli Mark, Gray Kathleen, Martin-Sanchez Fernando
Health and Biomedical Informatics Centre, The University of Melbourne, AUS.
Department of Healthcare Policy and Research, Weill Cornell Medicine, USA.
Stud Health Technol Inform. 2016;225:577-81.
Chronic pain places a significant burden on individuals as well as health services. Long wait lists to access public clinical pain management services can result, and health outcomes deteriorate. Innovative technologies, such as social media provide opportunities to support self-management within the participatory health framework. This paper aims to investigate patients' perceptions towards using social media while waiting for clinic access, with a particular focus on therapeutic affordances. Seventeen wait-listed patients underwent intervention using various social media resources as part of self-management. Thematic content analysis of semi-structured interviews examined patients' perceptions about social media use and participation. Three therapeutic affordances were most evident in the qualitative data: exploration, connection and narration. Barriers to participation were also identified, such as 'specificity of the resources'. Findings suggest social media are perceived positively. However, there is also the need to balance a desire to deliver evidence-based practice with patient-preferences in shared-decision making about social media use.
慢性疼痛给个人以及医疗服务带来了沉重负担。这可能导致公共临床疼痛管理服务的等待名单过长，进而使健康状况恶化。社交媒体等创新技术为参与式健康框架内的自我管理提供了支持机会。本文旨在调查患者在等待就诊期间对使用社交媒体的看法，特别关注其治疗功能。17名列入等待名单的患者接受了使用各种社交媒体资源进行自我管理的干预。通过对半结构化访谈的主题内容分析，考察了患者对社交媒体使用和参与的看法。定性数据中最明显的三种治疗功能是：探索、联系和叙述。还确定了参与的障碍，如“资源的针对性”。研究结果表明，患者对社交媒体的看法是积极的。然而，在关于社交媒体使用的共同决策中，也需要在提供循证实践的愿望与患者偏好之间取得平衡。
