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生命末期患有多种复杂慢性病儿童的居家护理:临终关怀与家庭健康护理的选择。

Home care for children with multiple complex chronic conditions at the end of life: The choice of hospice versus home health.

作者信息

Lindley Lisa C, Mixer Sandra J, Mack Jennifer W

机构信息

a College of Nursing , University of Tennessee , Knoxville , Tennessee , USA.

b Department of Pediatric Oncology and the Division of Population Science's Center for Outcomes and Policy Research, Harvard Medical School , Dana-Farber Cancer Institute , Boston , Massachusetts , USA.

出版信息

Home Health Care Serv Q. 2016 Jul-Dec;35(3-4):101-111. doi: 10.1080/01621424.2016.1208133. Epub 2016 Jul 6.

Abstract

Families desire to bring their children home at end of life, and this creates a variety of unique care needs at home. This study analyzed the child and family factors associated with hospice versus home health care use in the last year of life among children with multiple complex chronic conditions. Using the Andersen Behavioral Healthcare Utilization Model, the predisposing, enabling, and need factors of the child and family were shown to be significant predictors of hospice and home health care use. Hospice and home health care have advantages, and families may wish to use the service that best fits their needs.

摘要

家庭希望在孩子生命末期将其接回家中,这在家中产生了各种独特的护理需求。本研究分析了患有多种复杂慢性病的儿童在生命最后一年中与临终关怀和家庭医疗护理使用相关的儿童及家庭因素。运用安德森行为医疗保健利用模型,儿童和家庭的易患因素、促成因素及需求因素被证明是临终关怀和家庭医疗护理使用的重要预测指标。临终关怀和家庭医疗护理各有优势,家庭可能希望使用最符合其需求的服务。

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