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《平价医疗法案》在各州医疗补助计划实施中的差异:儿童同步护理案例

Variation In State Medicaid Implementation Of The ACA: The Case Of Concurrent Care For Children.

作者信息

Laird Jessica, Cozad Melanie J, Keim-Malpass Jessica, Mack Jennifer W, Lindley Lisa C

机构信息

Jessica Laird is a nursing student in the College of Nursing at the University of Tennessee, Knoxville, in Knoxville, Tennessee.

Melanie J. Cozad is an assistant professor in the Department of Health Services Policy and the Management Center for Effectiveness Research in Orthopedics at the University of South Carolina, in Columbia, South Carolina.

出版信息

Health Aff (Millwood). 2020 Oct;39(10):1770-1775. doi: 10.1377/hlthaff.2020.01192.

DOI:10.1377/hlthaff.2020.01192
PMID:33017257
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7874853/
Abstract

More than 55,000 children die each year in the United States, and hospice is used for very few of them at the end of their lives. Nearly one-third of pediatric deaths are a result of chronic, complex conditions, and the majority of these children are enrolled in Medicaid because of disability status or the severity of their disease. Changes in Medicaid/Children's Health Insurance Program regulations under Section 2302 of the Affordable Care Act require all state Medicaid plans to finance curative and hospice services for children. The section enables the option for pediatric patients to continue curative care while enrolled in hospice. We examined state-level implementation of concurrent care for Medicaid beneficiaries and found significant variability in guidelines across the US. The implementation of concurrent care has fostered innovation yet has added barriers to how pediatric concurrent care has been implemented.

摘要

在美国,每年有超过55000名儿童死亡,而临终关怀在他们生命末期的使用却非常少。近三分之一的儿科死亡是由慢性、复杂疾病导致的,这些儿童中的大多数因残疾状况或疾病严重程度而参加了医疗补助计划。《平价医疗法案》第2302条规定的医疗补助计划/儿童健康保险计划法规的变化要求所有州医疗补助计划为儿童提供治疗和临终关怀服务。该条款使儿科患者在参加临终关怀的同时能够继续接受治疗护理。我们研究了针对医疗补助计划受益人的同步护理在州一级的实施情况,发现美国各地的指导方针存在很大差异。同步护理的实施促进了创新,但也给儿科同步护理的实施增加了障碍。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b8ca/7874853/36ad4ac4edcd/nihms-1665993-f0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b8ca/7874853/36ad4ac4edcd/nihms-1665993-f0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b8ca/7874853/36ad4ac4edcd/nihms-1665993-f0001.jpg

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J Hosp Palliat Nurs. 2020 Jun;22(3):238-245. doi: 10.1097/NJH.0000000000000648.
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Hospice nurses request paediatric-specific educational resources and training programs to improve care for children and families in the community: Qualitative data analysis from a population-level survey.临终关怀护士要求提供儿科特定的教育资源和培训计划,以改善社区中儿童和家庭的护理:一项基于人群水平调查的定性数据分析。
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Behavioral Health Services Outcomes That Matter Most to Caregivers of Children, Youth, and Young Adults with Mental Health Needs.儿童、青少年和青年精神健康需求照护者最关心的行为健康服务结果。
Int J Environ Res Public Health. 2024 Feb 1;21(2):172. doi: 10.3390/ijerph21020172.
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Establishing the Need for Anticipatory Symptom Guidance and Networked Models of Disease in Adaptive Family Management Among Children With Medical Complexity: Qualitative Study.确定患有复杂疾病儿童的适应性家庭管理中预期症状指导和疾病网络模型的必要性:定性研究
JMIR Form Res. 2023 Nov 23;7:e52454. doi: 10.2196/52454.
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Evaluating the cost-effectiveness of pediatric concurrent versus standard hospice care.评估儿科同时期护理与标准临终关怀护理的成本效益。
Nurs Econ. 2022 Nov-Dec;40(6):297-304.
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Geographic Information Systems Utilization in Pediatric End-of-Life Research: A Scoping Review.地理信息系统在儿科生命终末期研究中的应用:范围综述。
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