Smits Stephanie, Boivin Jacky, Menon Usha, Brain Kate
Divison of Population Medicine, School of Medicine, Cardiff University, Neuadd, Meirionnydd, Heath Park, Cardiff CF14 4YS, United Kingdom.
School of Psychology, Cardiff University, Cardiff CF10 3AT, United Kingdom.
Ecancermedicalscience. 2016 Jun 30;10:650. doi: 10.3332/ecancer.2016.650. eCollection 2016.
Women at increased risk who decide not to have, or to delay, risk-reducing salpingo-oophorectomy have to rely on early diagnosis through symptom awareness and presenting to primary care as soon as possible in the absence of screening. However, little is known about the acceptability to women of this strategy. We aimed to gain an in-depth understanding of women's perceptions and previous experiences of ovarian cancer symptom management, and the influences on ovarian cancer awareness and anticipated symptom presentation.
Qualitative interviews were conducted with eight women at increased risk of ovarian cancer who had previously taken part in ovarian cancer screening and analysed using interpretative phenomenological analysis (IPA).
Familial experience of ovarian cancer and perceived personal risk shaped women's perceptions and behavioural responses to disease threat. Ovarian cancer information was perceived to be a double-edged sword, regarded as either useful for increasing knowledge and confidence in discussing symptom concerns with health professionals or to be avoided due to fears about cancer.
Women may be cautious about searching for information independently and in the absence of routine ovarian screening.
Thought needs to be given to how best to create and disseminate credible ovarian cancer symptom information materials.
决定不进行或推迟降低风险的输卵管卵巢切除术的高危女性，在没有筛查的情况下，必须依靠通过症状意识进行早期诊断，并尽快前往初级保健机构就诊。然而，对于女性对该策略的接受程度知之甚少。我们旨在深入了解女性对卵巢癌症状管理的看法和既往经历，以及对卵巢癌认知和预期症状表现的影响。
对八名曾参与卵巢癌筛查的高危女性进行了定性访谈，并采用解释现象学分析（IPA）进行分析。
卵巢癌的家族经历和感知到的个人风险塑造了女性对疾病威胁的看法和行为反应。卵巢癌信息被视为一把双刃剑，要么被认为有助于增加与健康专业人员讨论症状问题的知识和信心，要么因对癌症的恐惧而被避免。
在没有常规卵巢筛查的情况下，女性可能会谨慎地自行搜索信息。
需要思考如何以最佳方式创建和传播可靠的卵巢癌症状信息材料。
