Weale Albert, Kieslich Katharina, Littlejohns Peter, Tugendhaft Aviva, Tumilty Emma, Weerasuriya Krisantha, Whitty Jennifer A
Department of Political Science, University College London, London, UK.
Department of Primary Care and Public Health Sciences, King's College London, London, UK.
J Health Organ Manag. 2016 Aug 15;30(5):736-50. doi: 10.1108/JHOM-03-2016-0036.
Purpose - The purpose of this paper is to introduce the special issue on improving equitable access to health care through increased public and patient involvement (PPI) in prioritization decisions by discussing the conceptualization, scope and rationales of PPI in priority setting that inform the special issue. Design/methodology/approach - The paper employs a mixed-methods approach in that it provides a literature review and a conceptual discussion of the common themes emerging in the field of PPI and health priority setting. Findings - The special issue focuses on public participation that is collective in character, in the sense that the participation relates to a social, not personal, decision and is relevant to whole groups of people and not single individuals. It is aimed at influencing a decision on public policy or legal rules. The rationales for public participation can be found in democratic theory, especially as they relate to the social and political values of legitimacy and representation. Originality/value - The paper builds on previous definitions of public participation by underlining its collective character. In doing so, it develops the work by Parry, Moyser and Day by arguing that, in light of the empirical evidence presented in this issue, public participatory activities such as protests and demonstrations should no longer be labelled unconventional, but should instead be labelled as "contestatory participation". This is to better reflect a situation in which these modes of participation have become more conventional in many parts of the world.
目的——本文的目的是通过讨论公众和患者参与(PPI)在优先事项设定中的概念化、范围和基本原理,来介绍关于通过增加公众和患者在优先事项决策中的参与来改善医疗保健公平可及性的特刊,这些基本原理为该特刊提供了依据。设计/方法/途径——本文采用混合方法,即对PPI和卫生优先事项设定领域中出现的共同主题进行文献综述和概念讨论。研究结果——该特刊关注的是具有集体性质的公众参与,即这种参与涉及社会而非个人决策,与整个人群而非单个个体相关。其目的是影响公共政策或法律规则的决策。公众参与的基本原理可在民主理论中找到,特别是与合法性和代表性的社会及政治价值相关的部分。原创性/价值——本文在以往公众参与定义的基础上,强调了其集体性质。在此过程中,它发展了帕里、莫伊泽和戴的研究成果,认为根据本期所呈现的实证证据,抗议和示威等公众参与活动不应再被贴上非传统的标签,而应被称为“对抗性参与”。这是为了更好地反映在世界许多地区这些参与方式已变得更加常规的情况。