1 University of Chester, UK.
2 University of Cambridge, UK.
J Health Psychol. 2018 Sep;23(11):1464-1475. doi: 10.1177/1359105316660179. Epub 2016 Jul 28.
Despite high levels of psychological distress, there is a scarcity of research on unmet supportive care needs in haematological cancer patients. This qualitative study used an in-depth interpretative phenomenological approach to investigate the needs reported by six non-Hodgkin's lymphoma patients and explored how these needs consequently shaped the patient experience. Emergent themes included the following: concerns for family, information needs and the need for psychological support. Participants reported feeling different to other cancer patients. Lack of understanding of their diagnosis by friends and family and lack of access to relevant support services are notable unmet needs that differ from previous findings.
尽管存在较高水平的心理困扰，但针对血液癌症患者未满足的支持性护理需求的研究却很少。本定性研究采用深度阐释现象学方法，调查了 6 名非霍奇金淋巴瘤患者所报告的需求，并探讨了这些需求如何影响患者的体验。出现的主题包括：对家庭的担忧、信息需求和心理支持需求。参与者表示，他们感觉与其他癌症患者不同。与以往研究结果不同的是，他们还报告了一些未满足的需求，包括朋友和家人对其诊断缺乏理解，以及无法获得相关支持服务。
