Osby E, Reizenstein P
Department of Medicine, Karolinska Hospital, Stockholm, Sweden.
Med Oncol Tumor Pharmacother. 1989;6(2):133-41. doi: 10.1007/BF02985236.
In a questionnaire study 140 subjects answered 4200 questions in 1980 and 1986. They consisted of patients with myeloma, acute leukemia, lung carcinoma, and non-malignant disease and their relatives. In 22 additional cases the questionnaire was not answered. The results show that myeloma patients are less content with the general care than leukemia patients (P less than 0.05). Similarly, relatives of decreased myeloma patients are less satisfied with the information given to them than relatives of deceased leukemia patients (P less than 0.001). The information has improved with time, however, since the patients were more satisfied in 1986 than in 1980 (P less than 0.001) and relatives of myeloma patients still alive were more satisfied than relatives of patients who had died earlier (P less than 0.001). The opinions of patients were similar to those of their relatives. However, the relatives of leukemia patients were even more satisfied with the contact with the medical staff than the patients themselves (P less than 0.05). As many as 10-30% of the relatives never gave up hope for their relative's survival. Only two out of 27 deaths were considered not dignified. The lung carcinoma patients reported a less good quality of life (P less than 0.001), and less satisfaction with the information given (P less than 0.01), than the hematological patients from the same year. Similarly, their attitude to the medical care improved less (P less than 0.01), and they were less content with the general care than the leukemia group (P less than 0.05).(ABSTRACT TRUNCATED AT 250 WORDS)
在一项问卷调查研究中，140名受试者在1980年和1986年回答了4200个问题。他们包括骨髓瘤、急性白血病、肺癌患者以及非恶性疾病患者及其亲属。另外有22例未回答问卷。结果显示，骨髓瘤患者对总体护理的满意度低于白血病患者（P<0.05）。同样，骨髓瘤患者死亡后其亲属对所获信息的满意度低于白血病患者死亡后其亲属（P<0.001）。然而，随着时间推移信息有所改善，因为患者在1986年比1980年更满意（P<0.001），且仍在世的骨髓瘤患者亲属比更早去世患者的亲属更满意（P<0.001）。患者的意见与他们亲属的相似。然而，白血病患者的亲属对与医护人员接触的满意度甚至高于患者本人（P<0.05）。多达10% - 30%的亲属从未放弃其亲属存活的希望。27例死亡中只有2例被认为不够体面。与同年的血液学患者相比，肺癌患者报告的生活质量较差（P<0.001），对所获信息的满意度较低（P<0.01）。同样，他们对医疗护理的态度改善较小（P<0.01），且他们对总体护理的满意度低于白血病组（P<0.05）。（摘要截断于250字）
