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患癌后存活下来的青少年的家庭:社会情感调适、适应能力和社会支持。

Families of young adolescents who have survived cancer: social-emotional adjustment, adaptability, and social support.

作者信息

Kazak A E, Meadows A T

出版信息

J Pediatr Psychol. 1989 Jun;14(2):175-91. doi: 10.1093/jpepsy/14.2.175.

DOI:10.1093/jpepsy/14.2.175
PMID:2754573
Abstract

Young adolescent (10-15 year old) survivors of childhood cancer and their families (n = 35) completed self-report measures of perceived self-competence, social support, child behavior, parental distress, and family adaptability and cohesion, at two data points, 6 months apart. Relative to instrument norms and a comparison group (n = 13), survivors and their families scored within normative levels. The overall lack of group differences is discussed in terms of the implications of tests of the null hypothesis for families with chronically ill children. Changes over time for the survivors suggest a decline in available social support. Parents of survivors who received educational assistance reported less family adaptability and more distress than parents of survivors not receiving these services.

摘要

10至15岁的儿童癌症青少年幸存者及其家庭(n = 35)在相隔6个月的两个时间点完成了关于自我感知能力、社会支持、儿童行为、父母苦恼以及家庭适应性和凝聚力的自我报告测量。相对于工具常模和一个对照组(n = 13),幸存者及其家庭的得分处于正常水平。根据对慢性病患儿家庭的零假设检验的影响,讨论了总体上缺乏组间差异的情况。幸存者随时间的变化表明可获得的社会支持有所下降。接受教育援助的幸存者的父母比未接受这些服务的幸存者的父母报告的家庭适应性更低,苦恼更多。

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