Wind Anke, Roeling Mark Patrick, Heerink Jana, Sixma Herman, Presti Pietro, Lombardo Claudio, van Harten Wim
Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute-Antoni van Leeuwenhoek Hospital, Plesmanlaan 121, 1066 CX, Amsterdam, The Netherlands.
Department of Health Technology and Services Research, University of Twente, P.O. Box 217, 7500 AE, Enschede, The Netherlands.
BMC Cancer. 2016 Sep 2;16(1):711. doi: 10.1186/s12885-016-2752-9.
Accounting for patients' perspective has become increasingly important. Based on the Consumer Quality Index method (founded on Consumer Assessment of Healthcare Providers and Systems) a questionnaire was recently developed for Dutch cancer patients. As a next step, this study aimed to adapt and pilot this questionnaire for international comparison of cancer patients experience and satisfaction with care in six European countries.
The Consumer Quality Index was translated into the local language at the participating pilot sites using cross-translation. A minimum of 100 patients per site were surveyed through convenience sampling. Data from seven pilot sites in six countries was collected through an online and paper-based survey. Internal consistency was tested by calculating Cronbach's alpha and validity by means of cognitive interviews. Demographic factors were compared as possible influencing factors.
A total of 698 patients from six European countries filled the questionnaire. Cronbach's alpha was good or satisfactory in 8 out of 10 categories. Patient satisfaction significantly differed between the countries. We observed no difference in patient satisfaction for age, gender, education, and tumor type, but satisfaction was significantly higher in patients with a higher level of activation.
This European Cancer Consumer Quality Index(ECCQI) showed promising scores on internal consistency (reliability) and a good internal validity. The ECCQI is to our knowledge the first to measure and compare experiences and satisfaction of cancer patients on an international level, it may enable healthcare providers to improve the quality of cancer care.
考虑患者的观点变得越来越重要。基于消费者质量指数方法（建立在医疗服务提供者和系统消费者评估的基础上），最近为荷兰癌症患者开发了一份问卷。作为下一步，本研究旨在对该问卷进行调整和试点，以便在六个欧洲国家对癌症患者的护理体验和满意度进行国际比较。
在参与试点的地点使用交叉翻译将消费者质量指数翻译成当地语言。通过便利抽样，每个地点至少调查100名患者。通过在线和纸质调查收集了六个国家七个试点地点的数据。通过计算克朗巴哈系数来测试内部一致性，并通过认知访谈来测试效度。对人口统计学因素作为可能的影响因素进行了比较。
来自六个欧洲国家的698名患者填写了问卷。10个类别中有8个类别的克朗巴哈系数良好或令人满意。各国患者的满意度存在显著差异。我们观察到年龄、性别、教育程度和肿瘤类型对患者满意度没有差异，但激活水平较高的患者满意度显著更高。
这个欧洲癌症消费者质量指数（ECCQI）在内部一致性（可靠性）方面显示出有希望的分数，并且具有良好的内部效度。据我们所知，ECCQI是第一个在国际层面上测量和比较癌症患者体验和满意度的工具，它可能使医疗服务提供者能够提高癌症护理的质量。
