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Return to normal life after hematopoietic stem cell transplantation for thalassemia: a study of patients transplanted from matched sibling donors.

作者信息

Caocci G, Vacca A, Piras E, Serreli V, Dessi C, Marcias M, Risso P, La Nasa G

机构信息

Ematologia, Dipartimento di Scienze Mediche e Sanità Pubblica, Università di Cagliari, Cagliari, Italy.

Centro Trapianti Midollo Osseo, Ospedale Binaghi, Cagliari, Italy.

出版信息

Bone Marrow Transplant. 2016 Dec;51(12):1640-1641. doi: 10.1038/bmt.2016.243. Epub 2016 Sep 19.

DOI:10.1038/bmt.2016.243
PMID:27643871
Abstract
摘要

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Being a haematopoietic stem cell donor for a sick sibling: Adult donors' experiences prior to donation.作为患病兄弟姐妹的造血干细胞捐献者：成年捐献者在捐献前的经历。
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J Clin Oncol. 2015 Apr 10;33(11):1265-74. doi: 10.1200/JCO.2014.58.9747. Epub 2015 Mar 9.
5
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Long-term health-related quality of life in patients with β-thalassemia after unrelated hematopoietic stem cell transplantation.非血缘造血干细胞移植后β地中海贫血患者与健康相关的长期生活质量
Bone Marrow Transplant. 2022 Dec;57(12):1833-1836. doi: 10.1038/s41409-022-01823-2. Epub 2022 Sep 16.
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Comparison of Blood Transfusion Plus Chelation Therapy and Bone Marrow Transplantation in Patients with β-Thalassemia: Application of SF-36, EQ-5D, and Visual Analogue Scale Measures.β-地中海贫血患者输血加螯合治疗与骨髓移植的比较：SF-36、EQ-5D 和视觉模拟量表的应用。
Int J Health Policy Manag. 2015 Jun 13;4(11):733-40. doi: 10.15171/ijhpm.2015.113.
2
Conditioning regimens in allo-SCT for thalassemia major.同种异体造血干细胞移植治疗重型地中海贫血的预处理方案。
Bone Marrow Transplant. 2014 May;49(5):607-10. doi: 10.1038/bmt.2013.216. Epub 2014 Jan 20.
3
Long-term health-related quality of life evaluated more than 20 years after hematopoietic stem cell transplantation for thalassemia.
The Future of Gene Therapy for Transfusion-Dependent Beta-Thalassemia: The Power of the Lentiviral Vector for Genetically Modified Hematopoietic Stem Cells.
输血依赖型β地中海贫血的基因治疗未来：慢病毒载体对基因改造造血干细胞的作用
Front Pharmacol. 2021 Oct 1;12:730873. doi: 10.3389/fphar.2021.730873. eCollection 2021.
4
Hematopoietic stem cell transplantation for thalassemia major using HLA fully-matched and mismatched donor grafts.采用人类白细胞抗原（HLA）完全匹配和不匹配供体移植物的重型地中海贫血造血干细胞移植。
Transl Pediatr. 2021 Jun;10(6):1552-1565. doi: 10.21037/tp-20-415.
5
Economic evaluation of betibeglogene autotemcel (Beti-cel) gene addition therapy in transfusion-dependent β-thalassemia.输血依赖型β地中海贫血中betibeglogene autotemcel（Beti-cel）基因添加疗法的经济学评估
J Mark Access Health Policy. 2021 Jun 7;9(1):1922028. doi: 10.1080/20016689.2021.1922028.
6
A systematic review of quality of life in sickle cell disease and thalassemia after stem cell transplant or gene therapy.对造血干细胞移植或基因治疗后镰状细胞病和地中海贫血患者生活质量的系统评价。
Blood Adv. 2021 Jan 26;5(2):570-583. doi: 10.1182/bloodadvances.2020002948.
7
Health-related quality of life (HRQoL) in beta-thalassemia major (β-TM) patients assessed by 36-item short form health survey (SF-36): a meta-analysis.采用 36 项简明健康调查问卷（SF-36）评估重型β-地中海贫血患者的健康相关生活质量（HRQoL）：一项荟萃分析。
Qual Life Res. 2019 Feb;28(2):321-334. doi: 10.1007/s11136-018-1986-1. Epub 2018 Sep 7.
超过 20 年后评估地中海贫血症患者造血干细胞移植后的长期健康相关生活质量。
Blood. 2013 Sep 26;122(13):2262-70. doi: 10.1182/blood-2013-05-502658. Epub 2013 Aug 19.
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Quality of life assessment in hematopoietic stem cell transplantation performed on thalassemia major patients.重型地中海贫血患者造血干细胞移植的生活质量评估
Pediatr Hematol Oncol. 2012 Aug;29(5):461-71. doi: 10.3109/08880018.2012.693577. Epub 2012 Jun 19.
5
Hematopoietic stem cell transplantation for thalassemia.地中海贫血的造血干细胞移植。
Curr Stem Cell Res Ther. 2011 Jun;6(2):162-9. doi: 10.2174/157488811795495413.
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Prospective assessment of health-related quality of life in pediatric patients with beta-thalassemia following hematopoietic stem cell transplantation.前瞻性评估造血干细胞移植后β-地中海贫血患儿的健康相关生活质量。
Biol Blood Marrow Transplant. 2011 Jun;17(6):861-6. doi: 10.1016/j.bbmt.2010.09.011. Epub 2010 Sep 24.
7
Quality of life in patients with transfusion-dependent thalassemia after hematopoietic SCT.造血干细胞移植后输血依赖型地中海贫血患者的生活质量
Bone Marrow Transplant. 2008 Sep;42(5):319-27. doi: 10.1038/bmt.2008.165. Epub 2008 Jun 16.
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Long-term results of survival in patients with thalassemia major treated with bone marrow transplantation.重型地中海贫血患者接受骨髓移植后的长期生存结果。
Am J Hematol. 2008 Jul;83(7):528-30. doi: 10.1002/ajh.21175.
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Status of donor-recipient HLA class I ligands and not the KIR genotype is predictive for the outcome of unrelated hematopoietic stem cell transplantation in beta-thalassemia patients.供受者人类白细胞抗原I类配体的状态而非杀伤细胞免疫球蛋白样受体基因型可预测β地中海贫血患者非亲缘造血干细胞移植的结局。
Biol Blood Marrow Transplant. 2007 Nov;13(11):1358-68. doi: 10.1016/j.bbmt.2007.07.011. Epub 2007 Sep 14.
10
Decision-making in adult thalassemia patients undergoing unrelated bone marrow transplantation: quality of life, communication and ethical issues.接受非亲缘骨髓移植的成年地中海贫血患者的决策制定：生活质量、沟通与伦理问题。
Bone Marrow Transplant. 2006 Jan;37(2):165-9. doi: 10.1038/sj.bmt.1705236.