Cramm Jane Murray, Nieboer Anna Petra
Institute of Health Policy & Management (iBMG), Erasmus University, Rotterdam, The Netherlands.
BMC Health Serv Res. 2016 Sep 21;16(1):500. doi: 10.1186/s12913-016-1765-z.
Disease management programs based on the chronic care model have achieved successful and long-term improvement in the quality of chronic care delivery and patients' health behaviors and physical quality of life. However, such programs have not been able to maintain or improve broader self-management abilities or social well-being, which decline over time in chronically ill patients. Disease management efforts, population health management initiatives and innovative primary care solutions are still mainly focused on clinical and functional outcomes and health behaviors (e.g., smoking cessation, exercise, and diet) failing to address individuals' overall quality of life and well-being. Individuals' ability to achieve well-being can be assessed with great specificity through the application of social production function (SPF) theory. This theory asserts that people produce their own well-being by trying to optimize the achievement of instrumental goals (stimulation, comfort, status, behavioral confirmation, affection) that provide the means to achieve the larger, universal goals of physical and social well-being.
A shift in focus from the management of physical function, disease limitations, and lifestyle behaviors alone to an approach that fosters self-management abilities such as self-efficacy and resource investment as well as overall quality of life, is urgently needed. Disease management interventions should be aimed at adequately addressing all difficulties chronically ill patients face in life, such as the effects of pain and fatigue on the ability to maintain a job and social life and to participate in activities promoting physical and social well-being. Patients' ability to maintain engagement in stimulating work and social activities with the people who are important to them may be even more important than aspects of disease self-management such as blood pressure or glycemic control. Interventions should aim to make chronically ill patients capable of managing their own well-being and adequately addressing their needs in a broader sense. So, is disease management the answer to our problems in the time of aging populations and increased prevalence of unhealthy lifestyles, chronic illnesses, and comorbidity? No! Effective (disease) prevention, disease management, patient-centered care, and high-quality chronic care and/or population health management calls for management of overall well-being.
基于慢性病护理模式的疾病管理项目已在慢性病护理服务质量、患者健康行为及身体生活质量方面取得了成功且长期的改善。然而,此类项目未能维持或提升更广泛的自我管理能力或社会幸福感,而慢性病患者的这些方面会随着时间推移而下降。疾病管理工作、人群健康管理举措及创新性初级护理解决方案仍主要聚焦于临床和功能结局以及健康行为(如戒烟、锻炼和饮食),未能解决个体的整体生活质量和幸福感问题。通过应用社会生产函数(SPF)理论,可以非常具体地评估个体实现幸福感的能力。该理论认为,人们通过努力优化工具性目标(刺激、舒适、地位、行为确认、情感)的实现来创造自身的幸福感,这些工具性目标为实现更大的、普遍的身体和社会幸福感目标提供了途径。
迫切需要将关注点从仅管理身体功能、疾病限制和生活方式行为,转向培养自我管理能力(如自我效能感和资源投入)以及整体生活质量的方法。疾病管理干预措施应旨在充分解决慢性病患者在生活中面临的所有困难,例如疼痛和疲劳对维持工作和社交生活以及参与促进身体和社会幸福感活动能力的影响。患者与对他们重要的人保持参与刺激性工作和社交活动的能力,可能比疾病自我管理的某些方面(如血压或血糖控制)更为重要。干预措施应旨在使慢性病患者有能力管理自己的幸福感,并在更广泛的意义上充分满足他们的需求。那么,在人口老龄化以及不健康生活方式、慢性病和合并症患病率上升的时代,疾病管理是解决我们问题的答案吗?不!有效的(疾病)预防、疾病管理、以患者为中心的护理以及高质量的慢性病护理和/或人群健康管理需要对整体幸福感进行管理。